Please support funding for research to help fight Dyskeratosis Congenita
Dyskeratosis Congenita Outreach, Inc., incorporated as a 501(c)3 in 2009, was formed to support families affected by DC. The genetic disease most often occurs in children but also affects adults. It's symptoms are many, including bone marrow failure, gastrointestinal issues, pulmonary fibrosis, oral cancers, but are all linked to problems with telomere maintenance. Every patient affected by the condition has extremely short telomeres.
The rarity of the disease coupled with the extreme variance in symptoms often results in misdiagnosis and inappropriate treatment. DCO exists to spread awareness among doctors, but moreover to support and connect patients dealing with this often terminal illness with resources and expert medical advice. We support any endeavors that expand understanding of DC, its causes and its treatments.
At present, there is no cure for DC. But with the explosion of scientific research around telomere function we remain hopeful science will give us insight into stopping the disease in its tracks.