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Penn Presbyterian Medical Center Cardiology
Penn Presbyterian Medical Center Cardiology
Million Dollar Bike Ride for Orphan Disease Research
The Million Dollar Bike Ride is raising money for rare disease research. I'm riding 13 miles this...
Team CDKL5 Riding For a Cure
I am riding for a cause that is near and dear to my heart. Up until 3 years ago, I never heard of...
rareLife solutions
supporting rare disease community collaboration everywhere...
Snyder-Robinson Syndrome
Snyder-Robinson syndrome is a condition characterized by intellectual disability, muscle and bone...
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125 Years of Architecture Campaign Janhavi Chandra
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
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