Million Dollar Bike Ride-NUBPL Mitochondrial Complex 1 Fund
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Fundraising goal $30,000.00
Recent donations (15 donations)
Name DescendingX Amount
NUBPL Foundation $4450.00
Jerry and Mary Ann Faughn $1000.00
David Litt $100.00
Lucy's 4th Birthday Fundraiser for NUBPL Research & MDBR $1150.00
Dan Cauley $250.00
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Recent donations
Top donors (15 donations)
Anonymous $20000.00
NUBPL Foundation $4450.00
Lucy's 4th Birthday Fundraiser for NUBPL Research & MDBR $1150.00
The Jill and Craig Schroeder Fund $1000.00
Jerry and Mary Ann Faughn $1000.00
Next
Team NUBPL Foundation

What is NUBPL
It was discovered in 2010 that mutations in the NUBPL gene are a cause of Mitochondrial Complex 1 Deficiency. Iron-sulfur protein NUBPL, also known as nucleotide-binding protein like, is an iron-sulfur (Fe/S) protein that, in humans, is encoded by the NUBPL gene, located on chromosome 14q12.
Million Dollar Bike Ride - DOUBLE your donation
Research dollars are very difficult to come by for rare diseases like NUBPL. There are zero treatments and the disease is progressive. The Million Dollar Bike Ride is an incredible opportunity to raise desperately needed funding for NUBPL research for the discovery of a treatment breakthrough or cure. If we raise a minimum of $20,000, our efforts will be matched dollar-for-dollar up to $30,000.

Fundraising pages for other NUBPL Cyclists:

Team Carterman NUBPL Ride: https://socialfundraising.apps.upenn.edu/socialFundraising/jsp/fast.do?fastStart=customTemplate&id=113204130

Craig's NUBPL Ride Page: http://givingpages.upenn.edu/craignubpl/11319705

David's Ride for NUBPL Research: http://givingpages.upenn.edu/davidridesforkb

#Hope4KB Glenda's Ride for NUBPL Research: http://givingpages.upenn.edu/hopeforkb

Neal's NUBPL Ride: http://givingpages.upenn.edu/nealmathewnubpl

David Litt's Ride for NUBPL Research: http://givingpages.upenn.edu/forkatherine

Dan's Ride for NUBPL Research: http://givingpages.upenn.edu/danridesfornubpl

DONATE
We cannot fund NUBPL research without your support. Click the Donate Now! button at the top left-hand side and share this link with your friends and family.

Check by mail:
NUBPL Foundation
271 West Short Street, Suite 600
Lexington, KY 40507
*Memo - Million Dollar Bike Ride (Please specify if the donation is being made in honor of a patient)

100% of your donation is tax-deductible.
To learn more about NUBPL
Please visit www.nubpl.org or email David Faughn at nubpl.org@gmail.com.
Help us fund treatments and a cure for NUBPL
We cannot fund NUBPL research without the support of individuals like you. Together, we can push science in the direction of treatments and a cure.

Clinical symptoms include the following:

  • Onset neurological symptoms between 3-18 months
  • Global developmental delay
  • Ataxia
  • Nystagmus
  • Speech articulation difficulty
  • Cerebellar dysfunction: Progressive cerebellar & pons hypoplasia
Donation messages
To support Glenda McCoy's participation in the Million Dollar Bike Ride --The Jill and Craig Schroeder Fund
Team Carterman --Glenda McCoy
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser