Million Dollar Bike Ride - RASopathies

Million Dollar Bike Ride
Truly a special event. Not only are multiple rare disease groups riding in this event but the money raised will be matched by UPENN to support rare disease research. No amount is too small; your $5 = $10, $10= $20, & so on.
Vermont Rare
Vermont Rare is a non-profit organization established to support patients, families and caregivers affected by rare disease. Our goal is to be a voice for the rare disease community in Vermont and beyond; to educate and raise awareness about the impacts of living with rare disease on patients, families, caregivers and communities; and to provide financial assistance and support to those affected by rare disease.
Shane
Shane is our 7 year old who has a rare disease. CFC, which is in the RASopathies family affects cell development and growth along with many systems of the body. Like many other rare diseases, there is no cure, no treatment. Yet this does not define who Shane is. He is funny, smart in his own way, resilient, outgoing can takes every day as it comes.
Important Facts:
No donation is too small, here's why!
  • 7,000 rare and genetic diseases, 50% of people affected are children.
  • Rare disease impacts more people then AIDS and cancer combined
  • Total deaths from diabetes are projected to rise by more than 50% in the next 10 years.
  • Heart Disease is the Leading Cause of Death in America
  • There are more than 100 types of cancers; any part of the body can be affected.
  • 100% of your donation is tax-deductible
  • Penn Medicine is the #1 Hospital in the Region
Event details
MDBR
05/20/2018 07:30 AM
Raising money for RASopathies Riders and rare disease research.
Donate to participate!
Donation messages
Vermont Rare --Vermont Rare
In memory of Gaile Bailey in honor of Ride for Shane 2018! --Gaile Bailey
Donate now!
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Fundraising goal $750.00
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Recent donations (5 donations)
Name DescendingX Amount
Mr. Ray Chen $200.00
Vermont Rare
Anonymous $25.00
Gaile Bailey
Anonymous $75.00
Recent donations
Top donors (5 donations)
Vermont Rare
Mr. Ray Chen $200.00
Anonymous $75.00
Gaile Bailey
Anonymous $25.00
Event participants
Jack Bailey
Marybeth Bailey
Jack Bailey
Ray Chen
Event goal 6 participants
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