Million Dollar Bike Ride - Congenital Hyperinsulinism
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Team CHIbra is raring to go for congenital hyperinsulinism research!

The 2019 Raring to Go for CHI Team - the last time we got to ride together in person!
Donate to Support Congenital Hyperinsulinism Research!
Please support Team CHIbra and Raring to Go for CHI, the Congenital Hyperinsulinism International team, as we participate in the ninth annual Million Dollar Bike Ride! We are raising money for research leading to better treatments and cures for congenital hyperinsulinism.
About Congenital Hyperinsulinism
Congenital hyperinsulinism (HI) is the most frequent cause of severe, persistent hypoglycemia in newborn babies and children. With early treatment and aggressive prevention of hypoglycemia, brain damage can be prevented. However, brain damage can occur in children with HI if their condition is not recognized or if treatment is ineffective in the prevention of hypoglycemia. For more information, visit http://congenitalhi.org/ .
Get Involved!
This is an exciting time for the HI community because of the momentum around research for better detection, prevention, and treatment. Our participation in the Million Dollar Bike Ride in years past has led to:

2021 Grant Recipient: Dr. Elizabeth Rosenfeld, The Children's Hospital of Philadelphia for the Natural History of the Hyperinsulinism Hyperammonemia Syndrome - A Multi-center Observational Study Incorporating Patient-centered Data through the HI Global Registry (HIGR).

2020 Grant Recipient: Dr. Indraneel Banerjee, University of Manchester, Royal Manchester Children's Hospital for Maximizing the utilization of the Hyperinsulinism Global Registry (HIGR).

2019 Grant Recipient: Thomas Smith, PhD, of The University of Texas Medical Branch for new therapeutic treatments for hyperinsulinism/hyperammonemia syndrome.

2018 Grant Recipient: Dr. Amanda Ackermann of the Children's Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.

2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children's Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism.

2016 Grant Recipient: Dr. Changhong Li of Children's Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism.

2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy.

2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism.

Our efforts will be matched dollar-for-dollar by the University of Pennsylvania Penn Medicine Orphan Disease Center. This money will then be awarded as a research grant, so your contribution will go directly toward research for this important cause.

How can you be a part of this endeavor? There are two great options!

1. Donate to our fundraising effort using this page.
2. Cycle with our team in Philadelphia on Saturday, June 11, 2022, to rack up miles for research.

For more information about Congenital Hyperinsulinism International: http://congenitalhi.org/
For more information about this year's Million Dollar Bike Ride, visit this site: http://www.milliondollarbikeride.org/
For more information about the Penn Orphan Disease Center: http://www.med.upenn.edu/orphandisease/
Event details
Million Dollar Bike Ride
06/11/2022 07:30 AM
The Penn Medicine Orphan Disease Center (ODC) is partnering with Rare Disease Cycling to bring you the 9th Annual Million Dollar Bike Ride on June 11, 2021!
Donate to participate!
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser