Million Dollar Bike Ride - LGDA & LMI
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Fundraising goal $30,000.00
Recent donations (29 donations)
Name DescendingX Amount
THE FERRY FAMILY $5100.00
LGDA - Europe $25500.00
Mozian
T Mac $50.00
Murray Avenue PTA
Maria Elena Baldor
Laura Wechsler
The Emmet Family $100.00
Jennifer Opas
Anonymous $30.00
Denise Geertgens and Family
Lauren Geertgens
Ken Senior $50.00
Betsy Nolan $50.00
Gray Goldsmith
The MUFSD School Board, Rina, Paul, Ariana, Steve, Gladys, Christian, Sam
Ms. Jennifer Monaco
Ms. Patricia Griffin
Ana & Jamie Brennan
Ariana and David Cohen
Danielle DeLaurentis
Jack Kelly $500.00
Tim B. Hester $1000.00
Recent donations
Event participants
TIFFANY FERRY
Lauren Geertgens
Patricia Griffin
Tim B. Hester
Jack Kelly
Jack Kelly
John Kelly
Jack Kelly
Jennifer Monaco
Jennifer Opas
Ken Senior
Event goal 10 participants
LGDA / LMI Riders - To Give Hope & Find Help

Join us for the 2020 VIRTUAL Million Dollar Bike Ride!
Due to the recent COVID-19 outbreak, and social distancing recommendations, after much deliberation, the Orphan Disease Center has decided to host a VIRTUAL Million Dollar Bike Ride instead of gathering face-to-face.

We would like to use this opportunity to have our very first global event, where it doesn't matter where you are in the world, you can get involved. We appreciate that these are unprecedented times both financially and socially but with a little imagination it can still be done.

Since 2015 and with the help of our supporters, this annual event has raised over $650,000 and funded 10 research projects directly related to GLA, GSD, KLA, and CCLA!! All donations will be matched by UPenn Orphan Disease Center, up to $30,000, to fund a new research grant for our diseases. 100% of the funds raised goes towards these pilot grants, with no overhead taken out.


About Team LGDA / LMI

The LGDA is a 501(c)(3) nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by GLA/lymphangiomatosis, GSD, KLA, and CCLA. Learn more: https://www.lgdalliance.org

The LMI is a 501 (c)(3) nonprofit organization whose mission is to improve the clinical care of patients with GLA/lymphangiomatosis, GSD, KLA, and CCLA by funding research focused on identifying effective therapies for treating these rare disorders of the lymphatic system. Learn more: http://www.lmiresearch.org/

Here is a list of what your support has funded: https://www.lgdalliance.org/research-grants/

HOW YOU CAN HELP

1. Make a donation by clicking the blue "Donate Now" button at the top of this page,

2. Select one of these active participants support their efforts

http://givingpages.upenn.edu/donate/RidingwithScot

http://givingpages.upenn.edu/honoringAdrian

3. Register as a rider WITHOUT fundraising - $45 goes to the LGDA/LMI fund

Follow this link: https://www.milliondollarbikeride.org/registration and when prompted select "Register without fundraising" and select LGDA / LMI RIders from the list of teams provided.

4. Register as a rider WITH fundraising - $25.00 and raise $250 by June 13

Follow this link: https://www.milliondollarbikeride.org/registration and when prompted select "Register with fundraising" and select LGDA / LMI RIders from the list of teams provided.

Become an active participant and raise funds to support your efforts

5. Set up your own personal fundraising page to support LGDA / LMI Riders doing whatever activity you choose.

Use this link to set up your personal page: https://socialfundraising.apps.upenn.edu/socialFundraising/jsp/fast.do?FID=840827

If you choose to set up your own Giving Page, please send the link to support@lgdalliance.org and we will add it to the list of participants above.
For Active Participants:
Decide on a distance to ride, walk or run and ask others to make a donation to support your efforts.
  • Choose your distance of 13, 34 or 72 miles - with social distancing and limited time outside, the distances can now be completed over a period of time (finish date 13th June).
  • Whether you are on your stationary bike/treadmill or on the road - become part of Team LGDA / LMI. Join others by downloading a distance tracker and posting your progress through social media channels using #TeamLGDA/LMI and #PennMedMDBR2020
  • Self Isolating and can't go out - this can be done on a stationary bike or treadmill. Cover the miles from the comfort of your own home. Use a distance tracker and share your progress!
  • Share your fundraising page or the Team LGDA donation page with friends and family and ask them for a small donation to encourage you to complete your challenge and to help us reach our $30,000 target.
Donation messages
From the families and friends in Belgium and the UK of the Lymphangiomatosis & Gorham's Disease Alliance - Europe, for the wonderful research support program combined with with UPenn's Orphan Disease Center. --LGDA - Europe
For the Spano family. --Mozian
In memory of Chris Ward --Goldenberg & Weiner Family
In honor of Rebekah's father, Chris Ward and to support her son. My love and positive thoughts are with your family. --Laura Wechsler
More of Ms. Rebekah Spano's students would like to contribute as a way to honor her father and support her son, William Spano. Thank you Ms. Spano for everything you do for us, we appreciate you and we are sending you love! --Ms. Spano's First Grade Class
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser