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Million Dollar Bike Ride - Adult Polyglucosan Disease Fund
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Talented scientists see that success is on the horizon.
Fundraising goal $40,000.00
Recent donations (104 donations)
Name DescendingX Amount
Stuart Dorsky $125.00
Pam Chandler & David Carrick $100.00
Dr. Marc and Emily Lurie $500.00
Anonymous $250.00
Rabbi Daniel and Carol Isaak $200.00
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Recent donations
Top donors (104 donations)
Phyllis Weiss and Family $5500.00
Paul E. Singer Foundation $5000.00
Emil & Mariamma Weiss and children This amount includes donations indented below
   Dr. Alex Rovt    $3600.00
Dr. Alex Rovt $3600.00
Heidi and Rob
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APBD Tour de Friends - Help us earn $80K in Matching Funds!

APBD Manifests During the Prime of Life
APBD is a rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe degenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
We're Raising Dollars To Bring About a Cure
In 1991, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure! Please throw your weight behind the effort.
This year we have a Triple Play that boosts the power of your donation!
The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. And we also have Community Supporters who'll MATCH the ODC match. Every dollar you donate can generate $3 in research. *We respectfully ask that you make your donations before the ride starts on June 13.*

ODC banks all funds on our behalf and administers research grants to top notch researchers around the world. This is a powerful opportunity to advance APBD research. Please be generous with your support.

RIDE WITH US VIRTUALLY.. on your bike, on a scooter, on an exer-cycle, or in your imagination. And don't forget to take a friend with you! Go here to register https://bit.ly/APBDbiker2020


See our website: www.APBDRF.org for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.

Please be sure to check out our video: http://www.youtube.com/watch?v=AC47MnRJPQg&sns=em
Donation messages
May there be a treatment and a cure! --Pam Chandler & David Carrick
Keeping trying...Keep fighting....Keep hoping....Keep winning! --Dr. Marc and Emily Lurie
In honor of Chuck Saxe --Rabbi Daniel and Carol Isaak
Congratulations on a great ride! --Facebook friends of the Tour de Friends team
With much love and warm memories for the Coddon family --The Ringel Family
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser