Million Dollar Bike Ride - Adult Polyglucosan Disease Fund
Donate now!
Talented scientists see that success is on the horizon.
Fundraising goal $50,000.00
Recent donations (36 donations)
Name DescendingX Amount
Anonymous $5000.00
Dr. Marc Lurie
Mrs. Lori Weiss
D May Family $500.00
Dan and Michelle Sandler $360.00
Recent donations
Top donors (36 donations)
-- Adele S. This amount includes donations indented below $5500.00
   Dr. Marc Lurie
Anonymous $5000.00
Anonymous $2455.66
Chuck Saxe This amount includes donations indented below $750.00
   D May Family    $500.00
Louis Gram $500.00
APBD Tour de Friends - Help us earn $30K in Matching Funds!

APBD Manifests During the Prime of Life
APBD is a rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe degenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
We're Raising Dollars To Bring About a Cure
In 1990, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure! Please throw your weight behind the effort.
Penn Medicine's Orphan Disease Center Boosts the Power of Every Donation
The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. ODC banks all funds on our behalf and administers research grants to top notch researchers around the world. This is a powerful opportunity to advance APBD research. Please be generous with your support.

RIDE WITH US -- through the streets of Philly OR be a Virtual Rider in your own city. Go here to register

See our website: for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.

Please be sure to check out our video:
Donation messages
Any help that we can give to Chuck.....we give from our hearts. Emily and Marc --Dr. Marc Lurie
Go Team APBD Tour de Friends!!! --Jeff and Beth
In memory of my brother, Howard Epstein. --Laura and David Epstein
In memory of L D Coddon --C Murray
In memory of a loving mother and wife who died from the complications of APBD. --Anonymous

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser