Million Dollar Bike Ride - Pitt Hopkins
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  MDBR 2018!  
Recent donations (5 donations)
Name DescendingX Amount
Ash and Deanna Kalenchuk $1000.00
Bill and Jean $50.00
Ms. Nancy Nelson $100.00
Dan and Chris DePersis $25.00
Miss NANWEI CHEN $300.00
Recent donations
Top donors (5 donations)
Ash and Deanna Kalenchuk $1000.00
Miss NANWEI CHEN $300.00
Ms. Nancy Nelson $100.00
Bill and Jean $50.00
Dan and Chris DePersis $25.00

We're BACK!
Including $50,000 in matching funds that we were awarded from the UPenn Center for Orphan Disease Research, we ended up with over $100,000 for research from MDBR 2018! With those donations, we were able to fund the research of Dr. Andrew Kennedy at Bates College and Dr. Benjamin Philpot at University of North Carolina, Chapel Hill. We are so excited to have these great researchers on our team working to find a treatment for Pitt Hopkins.

What is Pitt Hopkins Syndrome?
Pitt Hopkins Syndrome is a rare, neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, seizures, gastrointestinal issues, lack of speech, and distinctive facial features. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are around 1,000 people in the world diagnosed with this syndrome, however we believe there are many more undiagnosed. Because loss of TCF4 prevents neurons from functioning currently, our scientist believe that studying Pitt Hopkins will also give us important insight into other neurological disorders with no known etiology like Alzheimers, Autism and Epilepsy.

For more information on Pitt Hopkins please visit
Register to Ride for Pitt Hopkins:
OUR TEAM!! We have some incredible people riding to advance Pitt Hopkins research this year!

Team EMMA! Emma's dad John will be riding for the sixth year for her! Check out their page here:

Team JOSHUA! Read Joshua's story and donate for him here:

Team BRENDAN will be supporting at the MDBR for the sixth year! Read Brendan's story and donate for him here:

Team CONNOR! Connor's family will be riding for the sixth year for him! Check out their page and donate for him here:

Team RYLIE! Rylie's family will be riding for the sixth year for her! Check out their page and donate for her here:

Team ALEXANDRA! Read Alexandra's story and donate for her here:

Team ANTHONY will be supporting at the MDBR for the sixth year! Read Anthony's story and donate for him here:

Team APRIL is back again! Read her story and donate for her here:


Registration for the 6th Annual Million Dollar Bike Ride is officially OPEN! This is a great fundraising event as every dollar we raise is matched by UPENN's Rare Disease Center!

Visit the MDBR website to register today!

NOTE: Only individuals who register as cyclist with fundraising will receive an official MDBR 2019 cycling jersey. If you wish to receive the jersey on event day, you must register by March 19th.


Saturday, June 8th
7:30am start
Start / Finish Line - Highline Park | 31st St. & Chestnut
Philadelphia, Pennsylvania
Free parking for all.

Three route options - 13, 34, or 72 miles.
Free t-shirt, refreshments, and entertainment included!

How to create your own giving page:
Fundraising cyclists are encouraged to create a giving page, where people can see your story of why you have chosen to ride and donate to your cause. For directions on how to create a personalized giving page, please visit

*** If you created a fundraising page last year you can reuse that page again this year!

Please contact Jessica Fletcher at if you have any questions or need help with this.
Why We Need You!
The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) is sponsoring this race to raise money for research in rare diseases such as Pitt Hopkins, and they will MATCH EVERY DOLLAR DONATED!! (up to $30,000) Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards research!
  • Only 1,000 diagnosed world wide
  • Rare diseases impact more people than aids and cancer combined
  • Non-profit Organization
  • Ran completely by volunteers
  • All riders will receive a t-shirt
  • 100% of your donation is tax-deductible
  • Give some amazing children hope
Donation messages
Go Pitt Hopkins Pedalers! Dawson will be cheering you all on from Canada! --Ash and Deanna Kalenchuk

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser