Million Dollar Bike Ride - Mucolipidosis Type IV
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Fundraising goal $25,000.00
Recent donations (15 donations)
Name DescendingX Amount
Yaron $180.00
Lachover
Mike and lauren cohn47 $1000.00
Anonym
The Lake Cecil Family $250.00
Next
Recent donations
Top donors (15 donations)
Gali and Josh Gordon
Liz Presberg family
Mike and lauren cohn47 $1000.00
SIGAL GAZIT $360.00
The Lake Cecil Family $250.00
Next
Team CURE ML4

The ML4 Foundation funds research that leads to treatments and a cure for this devastating disease and we know that you can help!
ML4 is a neurodevelopmental and neurodegenerative lysosomal disease that impairs all aspects of a growing child's function. Children with ML4 will likely never walk, never talk, will go blind, and have shortened lifespans. Approximately 80% of ML4 patients are Ashkenazi Jews, but the disease is pan-ethnic. Patients are frequently misdiagnosed, often with Cerebral Palsy. It is critical that children receive an accurate diagnosis, particularly so parents can be made aware that they are carriers of a genetic disease.
About the Million Dollar Race
The race will take place on June 8th, 2019 at Penn. There will be three distances riders can choose to enter with roads completely shut off for this race. This is a fully supported race with cycle marshalls and rest breaks every 10-15 miles. The race begins at 7:30am and will start and finish on the Penn campus.
Ways to help us in this bike-a-thon!!
1) Register to ride on June 8th at Penn and collect sponsorships. A great way to get in shape for the spring and summer! The ML4 Foundation will help you achieve your fundraising goal and you will help us find a CURE!

2) Sponsor a rider or honor a ML4 child you know: donate in honor of a rider or celebrate a ML4 child you know. No amount is too small or too great; every donation matters. Each generous donation is matched dollar for dollar!

Your donations directly fund research to help treat ML4!
Come join us in Philly and raise money through sponsorships! Donate and help us find a cure! Every act you take brings us closer to a treatment!

Funding this year will focus on getting us closer to gene therapy. Help us fund natural history research (evaluating the children in clinic) and push forward our gene therapy research.
  • We raise $25,000!
  • UPenn provides $50,000 grant!
Donation messages
In Honor of our "Chief", Rebecca Merrens Oberman! Thank you for loyally keeping the ball rolling towards a cure for All of our Loved Ones! --The Lake Cecil Family
For the health of Inbar Alon and all the other wonderful kids --Ido and Tomer Carmel
Go Team ML4! --Gali and Josh Gordon
In honor of Ryan Gale --Mrs. Janet Price
Much gratitude and love to all of our children, their families, friends and the ML4 Foundation and others in the medical community supporting us --Liz Presberg family
Donate!

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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser