Million Dollar Bike Ride - Mucolipidosis Type IV
Donate now!
Fundraising goal $25,000.00
Recent donations (58 donations)
Name DescendingX Amount
Sima and Shaul Carmel $180.00
Campbell $200.00
Hilik & Evelyn Kotler
Elayne and Ofer Kalina $100.00
Recent donations
Top donors (58 donations)
Gali and Josh Gordon
OSG $1500.00
Liz Presberg family
Mike and lauren cohn47 $1000.00

The ML4 Foundation funds research that leads to treatments and a cure for this devastating disease and we know that you can help!
ML4 is a neurodevelopmental and neurodegenerative lysosomal disease that impairs all aspects of a growing child's function. Children with ML4 will likely never walk, never talk, will go blind, and have shortened lifespans. Approximately 80% of ML4 patients are Ashkenazi Jews, but the disease is pan-ethnic. Patients are frequently misdiagnosed, often with Cerebral Palsy. It is critical that children receive an accurate diagnosis, particularly so parents can be made aware that they are carriers of a genetic disease.
About the Million Dollar Race
The race will take place on June 8th, 2019 at Penn. There will be three distances riders can choose to enter with roads completely shut off for this race. This is a fully supported race with cycle marshalls and rest breaks every 10-15 miles. The race begins at 7:30am and will start and finish on the Penn campus.
Ways to help us in this bike-a-thon!!
1) Register to ride on June 8th at Penn and collect sponsorships. A great way to get in shape for the spring and summer! The ML4 Foundation will help you achieve your fundraising goal and you will help us find a CURE!

2) Sponsor a rider or honor a ML4 child you know: donate in honor of a rider or celebrate a ML4 child you know. No amount is too small or too great; every donation matters. Each generous donation is matched dollar for dollar!

Your donations directly fund research to help treat ML4!
Come join us in Philly and raise money through sponsorships! Donate and help us find a cure! Every act you take brings us closer to a treatment!

Funding this year will focus on getting us closer to gene therapy. Help us fund natural history research (evaluating the children in clinic) and push forward our gene therapy research.
  • We raise $25,000!
  • UPenn provides $50,000 grant!
Donation messages
Praying for cure. I'm honor of Inbar Alon and all the other kids. --Sima and Shaul Carmel
With all our love --Ana & oded
In honour of Ido Rabinovich ! Good luck ! --Rutie Idelovitch
For our Son Ido and all ML4 kids --Roberto & Sarit Rabinovich
success for you dear Ido!!! -- Budnick Graciela and Eduardo
Ido, we love you and froud of you! --Iris Bukur Gonen & Daniel Gonen
For all affected by ML4, especially our beautiful granddaughter, Danielle Marino. --Richard and Dolores Marino
In honor of Danielle! --The Ruanes
Good Luck Ido --Mrs. Marta and Saul RABINOVICH
In honour of granddaughter Sophie Bicknell --Gail Bicknell

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser