Million Dollar Bike Ride - Castleman Disease
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Fundraising goal $20,000.00

Castleman disease (CD) is a rare inflammatory disorder that occurs in people of all ages. It causes hyper-activation of the immune system which often results in multiple-organ dysfunction, leading to death within 3-10 years of diagnosis.
Castleman Disease Collaborative Network (CDCN) is applying an innovative approach to accelerate CD research, treatment, and patient care through global collaboration, strategic investments in research, and supportive resources for patients and their loved ones.
To learn more about CD and the efforts of the CDCN team, please visit
There are many ways to participate in the Million Dollar Bike Ride!

~ DONATE through this website. Commit to help us raise money and awareness for Castleman Disease. No matter how much or how little you are willing to donate, every dollar counts towards finding a cure for Castleman Disease!

~ REGISTER to RIDE with Team Castleman Disease WITHOUT Fundraising~
Registration Only - (must be 16 years old or older to participate as a cyclist, see liability wavier)

$80 from April 1, 2018-May 13, 2018

$100 day of event
Each registered cyclist will receive a complimentary event T-shirt. Preferred size is guaranteed for all who register prior to April 20, 2018.

~REGISTER to RIDE with Team Castleman Disease WITH Fundraising~
(must be 16 years old or older to participate as a cyclist, see liability waiver)
Registration fee: $25 and requires a minimum fundraising commitment of $250 (minimum must be met by May 20, 2018
Fundraising cyclists will receive a complimentary professional-style cycling jersey designed to commemorate the 5th annual event!
Register before March 12, 2018 and you are guaranteed to receive the sized jersey you select during registration. Register after this date, and a jersey in your size will be available after the event.

As you register, PLEASE affiliate with Team Castleman Disease, so that 100% of your registration fee will go to finding a cure for Castleman Disease.

A separate registration site will be made to volunteers. There is no cost for volunteers to participate, but must sign a liability waiver and be 18 year old or older.
Volunteers needed:
Start/finish area
Course marshals
Aide stations personnel
Ride leader/sag support

All volunteers who register before April 20, 2018 will be provided a t-shirt of the desired size at the time of registration. A limited number of t-shirts will be available for those who sign up after April, 20, 2018 and will be provided at the time of check in on a first come first serve basis. All volunteers will be provided a coupon for access to the post event meal.

Volunteer Registration is now OPEN for the day of the ride! Volunteers are needed for various tasks throughout the day, starting from 6:00am and ending around 4:00pm.

Please join the Million Dollar Bike Ride Information Session on April 12th from 6:15pm-7:30pm at Keswick Cycle in Glenside, PA. This Info Session will be a great opportunity to get excited about the ride, and also to answer any questions you may have as we get closer to the big day! Enjoy food, drinks, and discounted registration for the ride! Registration with fundraising will be FREE, and registration without fundraising will be $65 (instead of $80). You must be present at the Information Session to receive the discount!

Registration is still OPEN for our RARE Patient Advocacy Symposium! It's very important to have representation from our MDBR captains, families and cyclists at the symposium. The agenda is built around topics that are geared specifically towards the patient community, and keeping Castleman Disease wants, needs and interests top of mind. Please consider joining us on May 19th for an opportunity to learn from rare disease experts, and meet families and researchers involved. For reminders about the Symposium please visit:
MDBR Facebook Page and Twitter

To learn more about Castleman disease and how to support this incredible organization, please click on this link:

We thank you for your ongoing support. If you have any questions, please feel free to email or call Patty Prazenica, 919-605-2928 or Mileva Repasky, 412-860-8375

  • All donations matched dollar-for-dollar
  • Money will help fund clinical trial studies
Event details
05/20/2018 07:30 AM
Join hundreds of cyclists and pedal your way through downtown Philadelphia as The Penn Medicine Orphan Disease Center (ODC) brings you the 5th Annual Million Dollar Bike Ride on Saturday, May 20th, 2018, to raise more than $1 million for research in rare diseases! Ride with the Castleman Disease Team for a 13 mile (short route) 34 mile (medium route) or 72 mile (long route) Please visit for more route information. 100% of the funds raised through this website will go to finding a cure for Castleman Disease.
Donate to participate!
Donation messages
In honor of my sister, Amie Rose --Kelly
I will ride and have sponsors to raise as much beyond the $250 min as possible --Leo Adalbert
Good Luck to all of the participants ! GO WARRIORS !! --Krugers
Dr. Fajgenbaum, You're an inspiration to all of us! Thanks for all you do! Warm regards - The Raymond Family --Katia & Michael Raymond (Team SRS!)

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser