August 2, 2019 -Cooper received the diagnosis of an extremely rare disorder, Snyder-Robinson Syndrome. However, Coop has always been special to us. He has faced every challenge, and there are many, with a strong sense of determination and a contagious smile. Cooper has been working with physicians, physical, occupational,speech therapists and the most amazing teachers in the world for the past 13 years. He has been extremely lucky to receive so much support and encouragement. However, we see August 2 as not the finish line in his journey . We see it as the starting line. The starting line to finding medical supports and treatments for all the boys that are facing SRS.

Cooper thanks you all and is looking forward to reaching his goal in June.
Anyone that knows him knows that his tenacity is part of his charm. So, we have no doubt that he will love every mile of his adventure!