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Million Dollar Bike Ride - Dyskeratosis Congenita Fund
Team Telomere MDBR Grant

TEAM JOSH to TEAM TELOMERE
How did we start?
Team Telomere started as Team Josh's DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout.
Josh's lasting legacy is a gift to our community as his story has helped raise nearly $400,000 in research.
What did nearly $400,000 fund?
The short answer is, hope. Every dollar that you donate is a dollar closer to finding answers to this complicated and debilitating disease. We are proud of the research that was funded by your support! Dr. Jim Wilson, Director of the Orphan Disease Center once said "these grants go to fund the best scientists in the world." And we couldn't agree more! Meet your funded scientists here: https://teamtelomere.org/million-dollar-bike-ride/
What is Team Telomere?
Team Telomere 501(c)3 is an international community for TBDs.
We support all individuals with TBD no matter where they are in the world.

Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community's research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers.

To learn more about our amazing community visit:
https://teamtelomere.org/
Quick facts about what you are supporting
Being affected by such a rare disease can feel isolating. That's where events like this make all the difference to the individual and their family.
Your support lets them know they are never alone.

Here are some quick facts about TBDs:
  • Dyskeratosis Congenita is a telomere biology disorder
  • TBDs are a rare disease
  • There are currently 13 identified genes
  • DKC1, ZCCH1, TERC, TERT, TINF2, NHP2, NOP10, TCAB1, CTC1, RTEL1, ACD, PARN, STN1, NAF1
  • Mutations in telomere biology genes cause pulmonary fibrosis
  • 80% of TBD individuals experience bone marrow failure
  • TBD individuals are at a higher risk for several forms of cancer
  • There is currently no cure
Donation messages
Go Team Telomere!! --Ms. Katie Stevens
Go Team Telomere!! --Ms. Katie Stevens
This donation is being made on behalf of the many who've already donated for the MDBR. --Team Telomere
Donate now!
Fundraising goal $30,000.00
If you have a video you'd like to include, please provide the link.
  Matty, Massachusetts  
Recent donations (3 donations)
Name DescendingX Amount
Anonymous $2000.00
Anonymous $5000.00
Team Telomere $5000.00
Recent donations
Top donors (3 donations)
Team Telomere $5000.00
Anonymous $5000.00
Anonymous $2000.00
Donate!

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lagarry@upenn.edu | Leigh Anne Garry, Director of Business Process Integration and Technology Training | 215.746.8840
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