Social Fundraising

Million Dollar Bike Ride-Charcot-Marie-Tooth Fund

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Fundraising goal $10,000.00

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2019 Charcot-Marie-Tooth (CMT) Ride for a Cure

Ally Moore, New York City

Cutting-Edge Drug Development for CMT!

Hello Supporters!

This is an incredible time for the Charcot-Marie-Tooth patient community. This year marks a monumental period of clinical development with more treatments in the pipeline for our patients and families affected by CMT.

HNF is a leader in supporting and working closely with the scientific community, biotech/pharmaceutical companies and the FDA to bring drugs and gene therapies to patients.

Patient Focused Drug Development is a critical component of HNF's Therapeutic Research In Accelerated Discovery Program (TRIAD) which spans many collaborators from academics, government and industry. HNF's TRIAD incorporates a robust patient registry which has been critical to identify gaps of symptoms and care that needed to be addressed in the support of patients and for clinical trial design and patient recruitment for clinical trials.

When you push yourself to the limit, that's when you achieve outsized results!

I push and some close to me will say you sometimes go way beyond the limits! They worry about me. Well, my comeback is always the same, how else do you cure a disease? And I will not let CMT stop me from doing the things I love and show the CMT Community, our stakeholder partnerships and donors, that I have what it takes to ensure treatments and ultimately a cure for CMT.

I look at exercise challenges like the NYC Marathon, Bike NY and now this very intense 70 mile long ride as another feat I must tackle to illustrate that anything is possible when you want it bad enough.

Therapy development is really no different. Its a feat that is tough, long and requires perseverance.

Your support will help me and the HNF reach our research goals!

Our research this year is primarily focused on gene therapy for CMT and implementing an exercise protocol to help patients be more active. Our research agenda is supporting many types of CMT through drug intervention (CMT1A, CMT2A, CMT4, CMT6, Optic Hereditary Neuropathies, and more!)

Donation messages

Thank you. --Paul

Double Chai which is good mojo in Hebrew. Xo Lainie --Lainie from Trend-ABLE

'Praying for a cure!! --Ms. Martha Idewu

Let's do this! --Rice

Best of luck Allison! We love you! Love, Kerin and Joe --Mrs. Kerin Reilly

Good Luck! --Fred & Linda Kostialik

Thanks for riding for a CMT cure! --Kim Grosch

Thank you for all you do for HNF!! Good luck with the bike ride!! --Sprague Family

My brother is 79 years old and I am 75. Like so many of you, we are both battling CMT. It has impacted our lives a great deal. I am so grateful to those of you who are leading the fight to Find The Cure. And so, I am happy to do my small part. --Ron Gibala

Go Allison! Debbie and Jon --newcomb

Allison, we are so proud of you and all your accomplishments! Sue and George --Sue and George Sharpe

Good Luck! --The Sharpe's

Any help in this research area will be appreciated --Mrs. Doris Felt

Thanks for your perseverance. --Ms. Lakshmi Inaganti

Thanks for fighting to end CMT! We applaud you! --Ann & David Gentry

Go Allison!! Who's better then you!! --Loucas

Great Work Allison!!! --Sonny G

good luck --frank p

Allison, I'm so thankful for your enthusiasm and work for those who have CMT. Tracy Pratt --Allison Moore

Good Luck! --The Hollett's

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