Million Dollar Bike Ride - Congenital Muscular Dystrophy
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A photo from the inaugural 2018 Wheel-a-Thon!
"Everything is awesome when you're part of a team!" Lily demos her new power-assist wheelchair. March 2019. Go Team Cure CMD!
  Lily digs the faceprint.  
Fundraising goal $15,000.00
Recent donations (85 donations)
Name DescendingX Amount
Lisa Forte $100.00
Dave & Mickie Simpson
The Miller Family
Mary Hendricks $50.00
Smith Family $200.00
June 1st Wheel-a-thon Donations/ Raffle $1403.00
The Chen Family
Ms. Suzanne Smith
John, Jean, Evan and Tyler $100.00
Gale Richards & Bill Watkins $100.00
Recent donations

Divia Parks & Lily Brown
2019 Wheel-A-Thon for Muscular Dystrophy
Have fun & get exercise while raising money for muscular dystrophy research! Join us for the 2nd annual Wheel-a-Thon in Cabin John, Maryland on June 1, 2019 from 9-10 am. Kids and adults of all ages can participate!

Can't attend? No problem! Support us via a tax-deductible donation on this giving page. Does your place of employment offer matching grants? Ask them to match your donation. The event is a partnership with Team Cure CMD - a rare disease team participating in U Penn's annual Million Dollar Bike Ride. We are raising funds for Collagen VI Congenital Muscular Dystrophy (CMD) research.
Divia & Lily Live With Muscular Dystrophy
Maryland 4th grader Lily Brown and Virginia 1st grader Divia Parks were both born with Collagen VI CMD, a rare and progressive neuromuscular condition. CMDs are a group of genetic diseases which cause skeletal muscles to break down faster than they can repair or grow. A child with CMD may have various physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older.

Divia and Lily are both extremely outspoken, adventurous, silly and motivated to tackle every adventure life has to offer with the exception of salads. These girls simply do not like salads. Lily's and Divia's brain and heart are just like yours - yet their muscles are not. They are weak.

Divia is a part-time wheelchair user mainly to preserve her energy and help her keep up with friends when walking long distances. She has undergone bilateral heel cord surgery to assist in aiding her balance as well as preserve her mobility as long as possible. She is very much looking forward to the Wheel-a-thon and Million Dollar Bike Ride because who doesn't like to get places fast! Her daddy is a Team Captain for the Million Dollar Bike Ride and she is pretty sure she is going to beat him at the Wheel-a-thon. Not that it's a race.

Lily has never been able to run, jump, or climb stairs. But she can kayak and stand-up paddleboard, and you will see her flying along in the Wheel-a-Thon on her recumbent trike! She, like Divia and others with her condition, is smart and excited to learn. Lily has a power-assist wheelchair which she loves as it gives her freedom. Lily is fortunate to have a world-class physical therapy and medical team helping her. Our chief concern right now is the effect her condition can have on the respiratory muscles.

By donating, you are giving children like Lily and Divia a fighting chance!
What is the Million Dollar Bike Ride? And what is Team Cure CMD?
This Wheel-a-Thon is affiliated with U Penn's 6th annual Million Dollar Bike Ride (MDBR), a fundraiser in Philadelphia for rare disease research ( We have partnered with Team Cure CMD, a MDBR team raising money for Collagen VI CMD research. U Penn ensures 100% of raised funds goes towards research - zero overhead. This year, U Penn will match up to $30,000, so every penny counts twice! This is a huge boon for rare diseases which struggle to find funding for research.

Last year, thanks to friends and neighbors like you, our inaugural Wheel-a-Thon raised a whopping $20,000 of the $100,000 raised for Team Cure CMD. These funds were granted to two research projects investigating CRISPR gene editing as a treatment for Collagen VI CMD. Let's reach this goal again!
Email with any questions or comments you might have about the Wheel-a-Thon.
    Event details
    JUNE 1st WHEEL-A-THON: 9 - 10 a.m.
    06/01/2019 09:00 AM
    Join Divia and Lily at the Clara Barton Community Center parking lot at 7425 Macarthur Blvd, Cabin John, Maryland! The Wheel-a-Thon will start promptly at 9 am and the route is a half-mile loop. You do NOT need to donate to participate. All are welcome! All human-powered wheeled devices welcome. Scooters, strollers, wheelchairs, bikes - get creative! Refreshments and snacks will be served and every finisher gets a prize. Your family can continue on a longer ride at your leisure. We need volunteers to serve as route monitors! Middle & high school students can receive SSL hours. RSVP to noting ages of children so we can be sure to have enough prizes on hand. All donations are tax-deductible. Thank you for your generosity and support!
    Donate to participate!
    Donation messages
    The Wheel-a-thon was a beautiful exhibit of love, support and kindness . Always great to see Cabin John friends and neighbors band together for one another. Go Lily!! --Lisa Forte
    What a great event - fun and inspiring at the same time! Hugs to Lily and the whole family - Love, Dave & Mickie --Dave & Mickie Simpson
    Sorry we missed it! --The Miller Family
    I'm sorry I wasn't able to be at the Wheel-A-Thon. It looks as though it was a very exciting event. --Betsy Reyes
    Love to you Lily from Nyla's Grammy. --Mary Hendricks
    You're amazing Lily! --Smith Family
    Lily you are our Rockstar! --John, Jean, Evan and Tyler
    Lily, you are amazing! --Gale Richards & Bill Watkins
    Much love and many blessimgs, Lily! --La Sarmiento
    We are so lucky to have become friends with you this year, Lily. You are amazing and we love your strong spirit. We can't wait to see you kayak sometime. Love, the Tomlinsons --The Tomlinson Family
    Way to go today, Lily!! --The Curran's
    We love Lily's courage and fearless spirit! --Bill and Samantha Guerry
    Sorry we cannot be there this morning. Go Lily!! Lucy Donnan & Family --Donnan Family
    Go Team Lily!!! Everything is Awesome!! --Bob & Robin Grazioli aka 2 Robs!
    Jon William, Simon and I will be there to support! --Ms. Julie Rosenthal McCaffrey
    The Ferraguts are honored to help support this cause... --Julie, Alyssa, Cara
    Go get 'em, Lily!! --Modelfinos
    Can't wait to see you rolling along Lily! So proud that you have made this happen for a second year in a row!! --The Shipp Family
    I can't wait to support Lily. Sincerely, Ashlyn --Ashlyn Robinson
    Go Lily! You are such an inspiration to us all! --Mrs. Tedesco

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    2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser