Million Dollar Bike Ride - Lymphangioleiomyomatosis
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Fundraising goal $5,000.00
Recent donations (45 donations)
Name DescendingX Amount
Joey $10.00
rosemary schlegel $30.00
margaret galia $100.00
Nancy Cullen $30.00
Suzanne Marinell $25.00
Recent donations
Top donors (45 donations)
Ms. Linda DeMedio This amount includes donations indented below $950.00
   anon    $100.00
   Uncle John and Christina    $100.00
   Mr. Larry Thomas    $200.00
   Mary and Jody Goldbeck    $100.00
   Ann & Glenn Haig    $100.00
   Dee Feldman
   Mr. William Nessler III    $25.00
Ennio Magnarelli $250.00
carol tornetta $250.00
Mr. Larry Thomas $200.00
Janice Ward $100.00
Event participants
John Demedio
Jenneen Flamer
Ennio Magnarelli
William Nessler III
Jeanette Pike
A Breath of Hope 2019

About LAM
Fundraiser for LAM. It's almost that time again for the 6th Annual Million Dollar Bike Ride which will take place on Saturday June 8th this year. This year has been a tough year for me as it was my fifth time trying the medication Rapamune which is so far the only medication that has been approved to slow down the progression of the disease. I have experienced horrible side effects while taking the medication and have decided that I will not be going back on it. I am hoping that raising awareness for LAM and raising more money for reserach that they will be able to find another alternative medication or even a cure.
What is LAM?
Lymphangioleiomyomatosis (lim-FAN-je-o-LI-o-MI-o-ma-TO-sis) is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich-fluid in the chest and abdomen and growth of tumors in the kidneys. There are two forms of LAM, Sporadic LAM (S-LAM) and Tuberous Sclerosis LAM (TSC-LAM). S-LAM occurs for unknown reasons. LAM also can occur in women who have a rare disease called tuberous sclerosis complex (TSC).
Treatment for LAM so far...
Although great strides have been made in researching the disease, there is no cure for LAM. However, treatment with the drug sirolimus (also known as rapamycin or Rapamune) as well as everolimus (also known as Afinitor) may improve lung function in some women with LAM. Oxygen therapy is required for women with advanced lung disease. Lung transplantation is often considered for very advanced disease. While many women with LAM add several years to their lives through lung transplantation, it is not a cure.
Event details
Million Dollar Bike Ride
06/08/2019 07:00 AM
Million Dollar Bike Ride Raising Money for Rare Disease Research
Donate to participate!
Donation messages
Way to go, Mom! --Joey
Keep on pedelling! :) --Mr. John Demedio
Sending hope and prayers your way! --Elaine and Charles Russo
Sending sincere prayers and HOPE. --Jenneen Flamer
Good luck on your ride!!! --Ennio Magnarelli

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser