We are SO excited to be participating in this event again! This is the foundation's largest fundraiser of the year, and man oh man are we doing some exciting things with these donations!!! There is a current clinical trial that is targeting GI issues, which severely affects Logan and just about every PTHS kid and adult. There is also extremely promising gene therapy happening in the labs that gives us goosebumps! All of these studies, trials and research WILL be a game changer in Logan's quality of life, and it is all thanks to your donations. Every year we are blown away, and humbled, by the incredible support of our family and friends. Every single donation, no matter how big or small, truly means the world to our family.
Pitt Hopkins kids are amazing fighters. They never give up! These past few years have been especially challenging for the PTHS community. When the world shut down, our kids got shut out. All therapies and appointments came to a screeching hault, and some have yet to be resumed. Some kids thrived in home settings and virtual appointments, some regressed and new issues appeared. Families were tested on a new and scary level, but we all made it. Our kids made it and showed us how tough they really are! Logan continues to work hard to walk independently, communicate with an eye gaze device, and has proved how smart she is when we adapted her learning style. There is so much that I know she wants to communicate and show us, but finding ways that work for her is quite a challenge.
I can only imagine what she would be capable of if there were treatments..or a CURE! She will not let your donations go to waste. The hope alone keeps us going, which keeps her fighting!
To learn more about Logan and her Pitt Hopkin's story go to www.logansluxuries.com