Million Dollar Bike Ride - Team CDKL5
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Fundraising goal $5,000.00
Recent donations (17 donations)
Name DescendingX Amount
Ms. Leslie Kozera
The Spellman Family
Le family
Meredith and Derek Fess $200.00
The Callaghan's
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Recent donations
Top donors (17 donations)
Anonymous
Ms. Leslie Kozera
Jana, Jacob & Gabe
Meredith and Derek Fess $200.00
The Collins Family $150.00
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CDKL5 Ride for a Cure

Avery
CDKL5
Our daughter Avery is eight years old. She is the sweetest, happiest girl you will ever meet. She smiles quickly and melts the heart of everyone she encounters. She loves to swing with her sisters and ski with her family. Her big sisters dote on her and her family loves her fiercely.

She also has CDKL5.

CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. Most children affected by CDKL5 suffer from seizures that begin in the first few months of life. Most cannot walk, talk or feed themselves, and many are confined wheelchairs, dependent on others for everything.

At this time there is no cure.
Learn More about CDKL5
www.cdkl5.com
Help us raise grant money!!
CDKL5 is a rare disease, meaning fewer than 200,000 Americans are effected. This means procuring funding and resources to find a cure is difficult. The proceeds from the Million Dollar Bike Ride (100% of them) go toward funding grants to further research for CDKL5. If enough money is raised, the grant contribution will be matched dollar for dollar. I can not overstate the importance of this research for Avery and others like her. Please help us meet our goals!!
Event details
Million Dollar Bike Ride
06/11/2022 07:00 AM
The Million Dollar Bike Ride raises funds for Rare Diseases - like CDKL5. 100% of all money raised by participants directly funds lifesaving rare disease research. All money raised by our team will go towards CDKL5 research!
Donate to participate!
Donation messages
Thank you Team Avery! --Ms. Amanda Jaksha
With love and support! Have fun on the ride Avery! --Le family
Wishing the Team all the best during the ride and hoping you hit your goals!! --Meredith and Derek Fess
Have an awesome ride. --The Leard family
Sending love to the Kozera family! --Jana, Jacob & Gabe
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
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