Million Dollar Bike Ride - Team CDKL5
Donate now!
Fundraising goal $5,000.00
Recent donations (12 donations)
Name DescendingX Amount
The McNaughton Family $100.00
The Eckerts $100.00
The Fredericks $100.00
Jana, Jacob & Gabe
Recent donations
Top donors (12 donations)
Jana, Jacob & Gabe
Ms. Diane Lynch
Ms. Robin Liebman $100.00
The Changs $100.00
The Fredericks $100.00
CDKL5 Ride for a Cure

Our daughter Avery is six years old. She is the sweetest, happiest girl you will ever meet. She smiles quickly and melts the heart of everyone she encounters. She loves to swing with her sisters and ski with her family. Her big sisters dote on her and her family loves her fiercely.

She also has CDKL5.

CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. Most children affected by CDKL5 suffer from seizures that begin in the first few months of life. Most cannot walk, talk or feed themselves, and many are confined wheelchairs, dependent on others for everything.

At this time there is no treatment, and no cure.
Learn More about CDKL5
Help us raise grant money!!
CDKL5 is a rare disease, meaning fewer than 200,000 Americans are effected. This means procuring funding and resources to find a cure is difficult. The proceeds from the Million Dollar Bike Ride (100% of them) go toward funding grants to further research for CDKL5. If enough money is raised, the grant contribution will be matched dollar for dollar. I can not overstate the importance of this research for Avery and others like her. Please help us meet our goals!!
Event details
Million Dollar Bike Ride
06/08/2019 07:00 AM
The Million Dollar Bike Ride raises funds for Rare Diseases - like CDKL5. 100% of all money raised by participants directly funds lifesaving rare disease research. All money raised by our team will go towards CDKL5 research!
Donate to participate!
Donation messages
Good luck! --The McNaughton Family
Love you guys! --Jana, Jacob & Gabe
Best of luck in your fund raising! --Mrs. Christie Ammendola

Share this page with your friends
Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser