Log in
Million Dollar Bike Ride - Snyder-Robinson Syndrome
Donate now!
Fundraising goal $5,000.00
Recent donations (13 donations)
Name DescendingX Amount
Frank Saltarelli $50.00
House family
Anonymous $3000.00
Olga Luedtke $200.00
Mr. David Orosz $100.00
Next
Recent donations
Top donors (13 donations)
Anonymous $3000.00
Choice Hotels Matching Donation $1500.00
Mr. Michael Raymond This amount includes donations indented below $1200.00
   Jim and Dru Kolker    $200.00
   Mr. Darin Lippoldt    $250.00
Anonymous This amount includes donations indented below $1100.00
   House family
Katrina Luedtke $500.00
Next
The Million Dollar Bike Ride Returns on June 12, 2021!

About Snyder-Robinson Syndrome
Snyder-Robinson Syndrome (SRS) is a very rare genetic disorder. SRS causes intellectual disability, seizure disorders, hypotonia, osteoporosis, and other medical problems. Some SRS patients can't walk or talk. Its effects can be devastating, and it can lead to early death.

We're very hopeful that we'll soon develop treatments for SRS that will help our loved ones who struggle with this disease - with the help of our brilliant researchers and you, our generous donors!
Previous MDBR Grants for SRS Research
Over the last 5 years, Team SRS! has raised over $420,000 and funded nine research grants that were awarded to top scientists at leading institutions! Thank you for making this possible!

Information about these grants may be found at www.orphandiseasecenter.med.upenn.edu/awardedodcgrants, or send me an email inquiry at michael.raymond@snyder-robinson.org
100% of donations are used to fund scientific & medical research
Your donation will go directly to fund important research into SRS that has the promise to improve the quality of life of SRS patients, and to try to shed light on a number of more common diseases. The Penn Medicine Orphan Disease Center will match your donation (up to $30,000 per rare disease team)!

For more information about the Million Dollar Bike Ride, please see the Penn Medicine Orphan Disease Center's website at http://www.milliondollarbikeride.org/

To learn more about the Snyder-Robinson Foundation, please visit our website at: http://snyder-robinson.org/

To ride with our team, please contact Michael Raymond at michael.raymond@snyder-robinson.org
    Donation messages
    Go Team SRS! --House family
    Proud of all you and Katia have done for the SRS community. Olga Luedtke --Olga Luedtke
    Donated in honor of Connor --Jim and Dru Kolker
    This is a great cause, I'm glad I can help! --Mr. Brian Colder
    Donate!

    		Share this page with your friends
    Post fundraising progress

    delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
    2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser