Million Dollar Bike Ride - Snyder-Robinson Syndrome
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The Snyder-Robinson Foundation "Making Connections...Improving Lives"
   
Fundraising goal $15,000.00
Come ride with us in Philly on May 20 2017!

Snyder-Robinson Syndrome
Snyder-Robinson Syndrome (SRS) is a very rare genetic disorder. SRS causes intellectual disability, seizure disorders, hypotonia, osteoporosis, and other medical problems. Some SRS patients can't walk or talk. Its effects can be devastating.

The Importance of SRS Research
SRS is also the only disease known to be caused by an imbalance of polyamines - small molecules that are present in every living organism. They're necessary for normal development of brain, bone, and other cells- yet little is known about how they function. So the study of SRS presents a unique opportunity to understand polyamines and the role they might play in many common diseases.
Last year, Team SRS! participated for the first time in the Million Dollar Bike Ride. As a result of your generous donations and 100% matching donations from Penn Medicine, two $53,000 grants were awarded for research into Snyder-Robinson Syndrome (SRS) to Dr. Charles Schwartz of the Greenwood Genetic Center and Dr. Fernando Fierro, of the University of California, Davis. We hope their research will soon help us to develop much-needed treatments for individuals with SRS!

We're very grateful to the Penn Medicine Orphan Disease Center for this unique and wonderful opportunity to raise funds for rare disease research!

100% of donations are used to fund scientific & medical research
Your donation will go directly to fund important research into SRS that has the promise to improve the quality of life of SRS patients, and to try to shed light on a number of more common diseases - and the Penn Medicine's Million Dollar Bike Ride will match your donation!

For more information about the Million Dollar Bike Ride, please see the Penn Medicine Orphan Disease Center's website at http://www.milliondollarbikeride.org/

To learn more about the Snyder-Robinson Foundation, please visit our website at: http://snyder-robinson.org/

To ride with our team, please contact Michael Raymond at michael.raymond@snyder-robinson.org


  • $25
  • $50
  • $100
  • $250
  • $500
  • $1000
  • $5000
  • Other - Any amount will help to reach our goal!
  • 100% of your donation is tax-deductible
  • Your donation will be matched dollar for dollar by Penn Medicine
Donation messages
This donation is in memory of Miles Herbrand. --Rosemary Ziskovsky
In honor of Connor Raymond and his amazing family. --Nancy Manning
In honor of Connor Raymond, with hopes and prayers for research to be successful in find ways to ameliorate the symptoms of SRS. --Olga Luedtke
To honor my grandsons and all those who live with Snyder Robinson Syndrome. --Carol & Ken Fenichel
In support of my buddy Connor and his wonderful family!l --Courtney Luongo
In Honor of Connor Raymond --Katrina Luedtke
There's no better cause! --Brian Colder
Fight on, Raymonds! --The Plishker Family
Thank you Snyder-Robinson for the great work you are doing. Our Connor has made tremendous strides in development...especially communicating with his loved ones...... --Kevin M. Raymond
For all the families struggling with SRS. --Katia & Michael Raymond
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser