Research Funding: National MPS Society & Ryan Foundation
The National MPS Society exists to find cures for MPS and related diseases. Since 1974, the Society has advanced its mission by funding promising research projects, student fellowships, and clinical trials at a number of prestigious university centers throughout the world. Such projects have led to critical breakthroughs in finding treatments for these diseases. The Society collaborates with other LSD patient support groups and family research foundations in funding research and supports periodic technical conferences, allowing researchers to collaborate and discuss their findings, which benefits the larger rare disease community. Although great strides have been made in research, sponsors are urgently needed to accelerate the encouraging research that is bringing therapies - and ultimately the cures - to children and adults with MPS and related diseases.
The Ryan Foundation was founded in 1991 when Mark and Jeanne Dant's only child, three year old Ryan, was diagnosed with Mucopolysaccharidosis I (MPS I). At that time, children with MPS I rarely lived beyond the age of 15. Starting with a bake sale that netted $342, the all-volunteer Foundation grew and to date has distributed millions of dollars of research funding to scientists working on MPS.