Million Dollar Bike Ride - RASopathies
RASopathies Network

Who is the RASopathies Network?
The RASopathies Network is a non-profit dedicated to advancing research of the RASopathies by bringing together families, clinicians, and scientists. We have partnered with Penn to raise money for RASopathies research grants. To learn more go to
What are the RASopathies?
The RASopathies are a group of genetic conditions caused by mutations in genes on the Ras-MAPK pathway. These conditions, including Noonan syndrome/Noonan-related conditions (NS), cardio-facio-cutaneous syndrome (CFC), and Costello syndrome (CS) share many clinical features, including developmental delay, gastrointestinal difficulties, skeletal abnormalities, hematologic abnormalities, and growth delay.
Help Fund RASopathies Research
This grant will be awarded to academic researchers to initiate or advance research in further understanding of the RASopathies. Anything directed toward the development of a treatment or a cure.

  • 100% of your donation is tax deductible
  • 100% of your donation goes to RASopathies research, no administrative costs taken out of your donation!
  • Donations will be matched by Penn if we raise $20,000!
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Great Job RAS Riders. Sorry to miss ya this year but We'll be back! --Vermont Rare
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Fundraising goal $25,000.00
What are the RASopathies?
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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser