Social Fundraising

Million Dollar Bike Ride - RASopathies

RASopathies Network

Who is the RASopathies Network?

The RASopathies Network is a non-profit dedicated to advancing research of the RASopathies by bringing together families, clinicians, and scientists. We have partnered with Penn to raise money for RASopathies research grants. To learn more go to http://rasopathiesnet.org

What are the RASopathies?

The RASopathies are a group of genetic conditions caused by mutations in genes on the Ras-MAPK pathway. These conditions, including Noonan syndrome/Noonan-related conditions (NS), cardio-facio-cutaneous syndrome (CFC), and Costello syndrome (CS) share many clinical features, including developmental delay, gastrointestinal difficulties, skeletal abnormalities, hematologic abnormalities, and growth delay.

Help Fund RASopathies Research

This grant will be awarded to academic researchers to initiate or advance research in adults with RASopathies - specifically CFC, Costello, and Noonan syndrome.

100% of your donation is tax deductible

100% of your donation goes to RASopathies research, no administrative costs taken out of your donation!
Donations will be matched by Penn if we raise $20,000!

Donation messages

For Sam --Gerry and Linda Stronach

Go RASopathies Riders!!! --Lee Johnson and Lisa Schoyer

In honor of Max --Kristen Lampi, PhD

Keep up the good work! --Dr. Beth Stronach