This is an exciting time for the HI community because of the momentum around research for better detection, prevention, and treatment. Our participation in the Million Dollar Bike Ride in years past has led to:
2018 Grant Recipient: Dr. Amanda Ackermann of the Children's Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.
2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children's Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism
2016 Grant Recipient: Dr. Changhong Li of Children's Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism
2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy
2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism
Our efforts will be matched dollar-for-dollar by the University of Pennsylvania Penn Medicine Orphan Disease Center. This money will then be awarded as a research grant, so your contribution will go directly toward research for this important cause.
How can you be a part of this endeavor? There are two great options!
1. Donate to our fundraising effort using this page.
2. Cycle with our team on Saturday June 8, 2019! Contact Leo at firstname.lastname@example.org with questions or suggestions for the ride.
For more information about Congenital Hyperinsulinism International: http://congenitalhi.org/
For more information about this year's Million Dollar Bike Ride, visit this site: http://www.milliondollarbikeride.org/
For more information about the Penn Orphan Disease Center: http://www.med.upenn.edu/orphandisease/