Million Dollar Bike Ride for Orphan Disease Research Fund
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Million Dollar Bike Ride 2019
Fundraising goal $1,000,000.00
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2020 Million Dollar Bike Ride

Ride with us!
The Orphan Disease Center invites you to participate in the 6th Annual Philadelphia-based bicycle ride on Saturday, June 8th to raise money for rare disease research.

The Million Dollar Bike Ride is the only cycling fundraiser to start and end in the city of Philadelphia, with the start/finish line at Highline Park (31st and Chestnut) on Penn's campus. There are 3 route options -- 13, 34 and 72 miles. The ride starts at 7:30 am.
How it Works
Disease Teams are formed to represent various rare diseases, and are tasked with raising enough money to qualify for matching grants from the Orphan Disease Center which are ultimately used to fund research. The ODC is securing philanthropic and corporate donations that will be used to match dollar-for-dollar money raised by the cycling participants. Following the event, an RFA will be broadly distributed to the international scientific community requesting pilot grant applications to study diseases for which the designated money has been raised. Scientific leadership of the ODC and its extramural advisors will review the applications and make awards to those of the highest scientific merit which address the specific topics outlined in the RFA. The ODC will disperse the money to grantees and manage progress of the science and spending on the award.
Support Rare Disease Research!
If you would like to make a donation to our event, simply click on the red "donate" button to the left or the blue "donate now" button above, and then indicate in the "message" section of the donation page which Disease Team you would like to support with your donation. The registered teams are listed here:

Adult Polyglucosan Body Disease
A-T Children's Project
Castleman Disease
Cohen Syndrome
Congenital Muscular Dystrophy (CMD)
Cystic Fibrosis (Movin' for Mallory)
Dyskeratosis Congenita/Telemore Disorders
Fibrodysplasia ossificans progressive
Fibrous Dysplasia/McCune Albright Syndrome
Glut1 Deficiency Syndrome
Lymphangiomatosis & Gorham's Disease Alliance (LGDA) & Lymphatic
Malformation Institute (LMI)
Inclusion Body Myositis
Maple Syrup Urine Disease
Mucolipidosis Type IV (ML4)
Mucopolysaccharidosis (Gene Spotlight)
Mucopolysaccharidosis and Mucolipidosis (MPS)
Neurodegeneration with Brain Iron Accumulation
Neuroendocrine cell Hyperplasia of Infancy
Niemann Pick Type C
NUBPL, Mitochondrial Complex 1 Deficiency
Pitt Hopkins Syndrome
Congenital hyperinsulinism
SETBP1 Disorder
Snyder-Robinson Syndrome
STXBP1 Encephalopathy
TBCK Syndrome

Or, if there is not a specific team you wish to support, we will distribute your donation equitably among the registered teams.

Check out the Million Dollar Bike Ride Website!
Interested in riding with us? Visit to register today!
  • All cyclists receive a t-shirt
  • All cyclists who fundraise also receive a cyclist jersey!
  • Food and entertainment provided
  • Help support our 37 registered disease teams!

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser