Million Dollar Bike Ride - Independent Riders Fund
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Million Dollar Bike Ride 2017
   
Fundraising goal $1,000,000.00
Recent donations (18 donations)
Name DescendingX Amount
Tom King $100.00
Anonymous $75.00
Miles for Millie $150.00
Allan & Suzy Blumenthal $25.00
Ms. Melissa Elkinton
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Recent donations
Top donors (18 donations)
Anonymous
Ms. Melissa Elkinton
Fredda Harris $200.00
Miles for Millie $150.00
Mr. John Kasper $100.00
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2019 Million Dollar Bike Ride

Ride with us!
The Orphan Disease Center invites you to participate in the 6th Annual Philadelphia-based bicycle ride on Saturday, June 8th to raise money for rare disease research.

The Million Dollar Bike Ride is the only cycling fundraiser to start and end in the city of Philadelphia, with the start/finish line at Highline Park (31st and Chestnut) on Penn's campus. There are 3 route options -- 13, 34 and 72 miles. The ride starts at 7:30 am.
How it Works
Disease Teams are formed to represent various rare diseases, and are tasked with raising enough money to qualify for matching grants from the Orphan Disease Center which are ultimately used to fund research. The ODC is securing philanthropic and corporate donations that will be used to match dollar-for-dollar money raised by the cycling participants. Following the event, an RFA will be broadly distributed to the international scientific community requesting pilot grant applications to study diseases for which the designated money has been raised. Scientific leadership of the ODC and its extramural advisors will review the applications and make awards to those of the highest scientific merit which address the specific topics outlined in the RFA. The ODC will disperse the money to grantees and manage progress of the science and spending on the award.
Support Rare Disease Research!
If you would like to make a donation to our event, simply click on the red "donate" button to the left or the blue "donate now" button above, and then indicate in the "message" section of the donation page which Disease Team you would like to support with your donation. The registered teams are listed here:

Angelman Syndrome
Adult Polyglucosan Body Disease
Ataxia-Telangiectasia
CRB1
Castleman Disease
Congenital Muscular Dystrophy - Collagen VI
Cystic Fibrosis
Fibrous Dysplasia/McCune Albright Syndrome
Mucopolysaccharidosis
Glut1 Deficiency Syndrome
Neurodegeneration with Brain Iron Accumulation
(Leave blank)
Pitt Hopkins Syndrome
Raring to Go for CHI
RASopathies
Fibrodysplasia ossificans progressiva
CDKL5 Deficiency Disorder
Choroideremia
Dyskeratosis Congenita/Telomere Disorders
Gorham-Stout disease & generalized lymphatic anomaly
Mucopolysaccharidosis and Mucolipidosis
Niemann Pick Type C
Maple Syrup Urine Disease
Snyder-Robinson Syndrome
Mucolipidosis Type IV
Lymphangioleiomyomatosis
Neuroendocrine cell Hyperplasia of Infancy
NUBPL, Mitochondrial Complex 1 Deficiency
STXBP1 Encephalopathy
CADASIL
Charcot-Marie-Tooth
Inclusion Body Myositis
SETBP1 Disorder

Or, if there is not a specific team you wish to support, we will distribute your donation equitably amongst the registered teams.

Check out the Million Dollar Bike Ride Website!
Interested in riding with us? Visit www.milliondollarbikeride.org to register today!
  • All cyclists receive a t-shirt
  • All cyclists who fundraise also receive a cyclist jersey!
  • Food and entertainment provided
  • Help support our 27 registered disease teams!
Donate!

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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser