Million Dollar Bike Ride for Orphan Disease Research Fund
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Fundraising goal $1,000,000.00
Recent donations (31 donations)
Mary Beth Wigley $25.00
Alice Dagit
Mindy Carter & Ron Ashkenasy
Matt and Karen
Katie Jiang
Top donors (31 donations)
Angel donation $500.00
Susan and Scott Truxal $500.00
Angel donation #2 $500.00
Dr. Denis Boucher
Anonymous $200.00
2017 Million Dollar Bike Ride

Ride with us!
The Orphan Disease Center invites you to participate in the 4th Annual Philadelphia-based bicycle ride on Saturday, May 20, 2017 to raise money for rare disease research.

The Million Dollar Bike Ride is the only cycling fundraiser to start and end in the city of Philadelphia, with the start/finish line at Highline Park (31st and Chestnut) on Penn's campus. There are 3 route options -- 12, 33 and 73 miles. The ride starts at 7:30 am.
How it Works
Disease Teams are formed to represent various rare diseases, and are tasked with raising enough money to qualify for matching grants from the Orphan Disease Center which are ultimately used to fund research. The ODC is securing philanthropic and corporate donations that will be used to match dollar-for-dollar money raised by the cycling participants. Following the event, an RFA will be broadly distributed to the international scientific community requesting pilot grant applications to study diseases for which the designated money has been raised. Scientific leadership of the ODC and its extramural advisors will review the applications and make awards to those of the highest scientific merit which address the specific topics outlined in the RFA. The ODC will disperse the money to grantees and manage progress of the science and spending on the award.
Support Rare Disease Research!
If you would like to make a donation to our event, simply click on the red "donate" button to the left or the blue "donate now" button above, and then indicate in the "message" section of the donation page which Disease Team you would like to support with your donation. The registered teams are listed here:

Raring to Go for CHI (Congenital Hyperinsulinism International)
Team LGDA (Lymphangiomatosis & Gorham's Disease Alliance)
Team NTSAD (Tay-Sachs, Sandhoff, GM1, and Canavan)
Penn Scientists for Orphan Disease Research (PSODR)
APBD Tour de Friends (Adult Polyglucosan Body Disease)
Bike to End Duchenne (Duchenne Muscular Dystrophy)
Team Josh & the DCO Riders (Dyskeratosis Congenita)
Stop ALD Foundation 2016 (Adrenoleukodystrophy)
The Easy Breathers (Lymphangioleiomyomatosis)
Cure CMD (Congenital Muscular Dystrophy)
Team NPC (Niemann-Pick disease type C)
Team Cure ML4 (Mucolipidosis Type IV)
Movin' for Mallory - Cystic Fibrosis
Emily's Entourage (Cystic Fibrosis)
Team FARA (Friedreich's Ataxia)
Team CDKL5 Riding for a Cure
MPS (Mucopolysaccharidoses)
RASopathies Network Riders
Snyder-Robinson Syndrome
Team Castleman Disease
Fibrous Dysplasia Team
A-T Children's Project
Pitt Hopkins Pedalers
NBIA Disorders
Team LMI

Or, if there is not a specific team you wish to support, we will distribute your donation equitably amongst the registered teams.

Check out the Million Dollar Bike Ride Website!
Interested in riding with us? Visit to register today!
  • All cyclists receive a t-shirt
  • All cyclists who fundraise also receive a cyclist jersey!
  • Food and entertainment provided
  • Help support our 27 registered disease teams!

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser