Million Dollar Bike Ride - Adrenoleukodystrophy
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Fundraising goal $40,000.00
Recent donations (19 donations)
Name DescendingX Amount
Leigh & Avi Savar $252.00
Amy and Len Feldman $100.00
Stacy, Mitch, Matt & Sky $50.00
Stacy, Mitch, Matt & Sky $50.00
Mr. Reha Erzurumlu $100.00
Recent donations
Top donors (19 donations)
Anonymous $2500.00
Steve Barsh & Amber Salzman This amount includes donations indented below $2080.00
   Eve and Bobby Lapin    $180.00
   Mr. Carl Marbach    $100.00
Gail & Sheldon Salzman $1000.00
Dr. Horace Barsh $1000.00
The Myelin Project $1000.00
Team ALD Bike Ride Fund Raiser

Let's hit the max of $50k in 2017!
In 2016, with the Million Dollar Bike Ride (MDBR) we raised $50,000 which the MDBR *doubled* and we were able to put $100,000 into ALD and AMN research. Our goal for 2017 is to raise $50,000 again! Please help us meet our 2017 goal and put even greater investment into ALD & AMN!
Our mission is to improve health outcomes for individuals with X-linked adrenoleukodystrophy (ALD) by raising disease awareness, empowering patients, and accelerating the translation of scientific advances into better clinical care.
About Adrenoleukodystrophy (ALD)
Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 17 000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers. The most devastating form of ALD appears in childhood, generally between the ages of four and ten years old. Normal, healthy boys suddenly begin to regress. At first, they simply show behavioral problems, such as withdrawal or difficulty concentrating. Gradually, as the disease ravages their brain, their symptoms grow worse, including blindness and deafness, seizures, loss of muscle control, and progressive dementia. This relentless downward spiral leads to either death or permanent disability, usually within 2 to 5 years from diagnosis. Today, new scientific knowledge offers hope for the successful treatment and prevention of ALD. But it is urgent that we invest in research that will advance new therapies, as well as new tools for early diagnosis and educational campaigns that will raise awareness so that children with ALD can be identified as early as possible, while there is the best hope of a beneficial treatment.
Ride, volunteer or donate! All donations will be matched by Penn!
We have the opportunity to team up with Penn's Center for Orphan Disease Research & Therapy (CODRT) to participate in a bike ride to raise awareness and fund research for rare diseases. Each rare disease team participating will raise funds to be directed to their disease and all money we raise will be doubled (matched) by Penn's CODRT.
  • Riding Fee
  • $50 - $65
Donation messages
Great cause for all the children that suffer from ALD!! Xo, Stacy, Mitch, Matt& Sky --Stacy, Mitch, Matt & Sky
Good Luck on the bike ride!!! Xo , Stacy, Mitch, Matt & Sky --Stacy, Mitch, Matt & Sky
In loving memory of Robert Howard Kaye, Alan Reed Abelman, Greg Stuart Abelman, Pauline Kaye and Sandee Abelman --Shari J. Spitzer
In memory of Oliver Lapin --Kathy Knott
In honor of Spencer Barsh and Elliott Lapin and in memory of Oliver Lapin --Eve and Bobby Lapin

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser