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Our Girl!
The Ride for LNS
We are riding for our sweet Georgia girl and we are riding for all families impacted by Lesch Nyhan Disease (LND), with hopes of raising funds to advance LND research as quickly as possible. Georgia suffers from the everyday pain of spasticity, dystonia and GI issues. Additionally, her vocal cords are affected by her severe motor disorder. She is 2.5 and cannot roll, sit, stand or walk. She cannot speak. She is on multiple medications to manage her kidneys as they overproduce uric acid, leading to kidney stones, gout and potential kidney failure. She is involved in physical, occupational, and speech therapies and is on multiple alternative treatments. We have tried so many medications to assist with pain and increase her quality of life but no treatment options thus far have offered long-term or profound solutions for his neurological deficits. My family, and the entire LND community, has been given this amazing opportunity to ride the Million Dollar Bike Ride to raise funds for LND researchers to find treatments and cures for our rare disease heroes.