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Million Dollar Bike Ride - Pitt Hopkins
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More like "LOOKIN LIKE a MILLION DOLLAR" Bike Ride. Ammirite, ladies?
Calvin's story....
   
Fundraising goal $6,500.00
Recent donations (1 donations)
Name DescendingX Amount
Dr. Ira Lapidus $500.00
Recent donations
Top donors (1 donations)
Dr. Ira Lapidus $500.00
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Fiona & Gwen's Team- Pedal for Pitt Hopkins

Who We Ride For
Gwen's sweet nephew Calvin was diagnosed three years ago with a rare genetic disorder call Pitt Hopkins. Since that time, her sister and brother-in-law and other families around the world have banded together to create the Pitt Hopkins Research Foundation - www.pitthopkins.org

Every cent that Pitt Hopkins Research Foundation goes to the research- and this is important: the research is truly cutting edge, and if you know anyone with ALS, Alzheimer's or Autism, then this is of interest because single gene disorders like Pitt Hopkins (where the cause has been identified) is one of science's best hopes for finding treatment for other genetically caused syndromes. This research affects us all.
What is Pitt Hopkins?
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by profound developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, seizures and severe intellectual disability. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 300 children in the world diagnosed with this syndrome, however we believe there are many more.
So Please Give Us Some Money
If you want to be inspired by the children and families of Pitt Hopkins and the amazing work they and the researchers have accomplished in just the past few years, there are several who can do that so much better than we can. Please check out the www.pitthopkins.org and, for her journey in her own words, read Gwen's sister's article in UVA Magazine.
http://uvamagazine.org/first_person/article/the_quality_of_souls#.UXX-lYKcNxW
Or watch Calvin show you how special he is, right here:
http://www.youtube.com/watch?v=naCu4k6ZSDg
WHY THIS RIDE IS A BIG DEAL FOR US
The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) is sponsoring this race to raise money for research in rare diseases such as Pitt Hopkins, and they will MATCH EVERY DOLLAR DONATED!! (up to $50,000) Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards research!
  • Rare diseases impact more people than aids and cancer combined
  • Give some amazing children hope
  • Pitt Hopkins is run completely by Volunteers
  • 100% of your donation is tax-deductible
Event details
Million Dollar Bike Ride - Pitt Hopkins
05/09/2015 08:00 AM
Million Dollar Bike Ride to End Rare Disease Start/Finish Line - Highline Park (31st and Chestnut), Philadelphia, PA Free parking for all.
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Donation messages
In honor of our Grandson Calvin, Love Gigi & Poppy --Dr. Ira Lapidus
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lagarry@upenn.edu | Leigh Anne Garry, Director of Business Process Integration and Technology Training | 215.746.8840
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser