Million Dollar Bike Ride - Mucopolysaccharidosis
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Watch Journey of Hope, our courageous children suffering from rare diseases and consider a donation!
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Fundraising goal $50,000.00
Recent donations (3 donations)
Carrie Dunn $500.00
Alison Blue $100.00
Terri Klein $102.00
Top donors (3 donations)
Carrie Dunn $500.00
Terri Klein $102.00
Alison Blue $100.00
Team MPS and Related Diseases - Million Dollar Bike Ride

Laynie Holland, MPS I for MDBR 2016
Please Help to Make a Difference!
We have received a commitment to match DOLLAR-FOR-DOLLAR every donation up to $50,000 at this event! The opportunity will bring in an astonishing $100,000 for MPS specific research if we can motivate our contacts to contribute to our goal.

Please make a donation today, and share this link with friends and family and through social media. Our timeline is short, but we can do this together! Donate $5, $10, $20 - every gift is valuable.
Research Funding: National MPS Society & Ryan Foundation
The National MPS Society exists to find cures for MPS and related diseases. Since 1974, the Society has advanced its mission by funding promising research projects, student fellowships, and clinical trials at a number of prestigious university centers throughout the world. Such projects have led to critical breakthroughs in finding treatments for these diseases. The Society collaborates with other LSD patient support groups and family research foundations in funding research and supports periodic technical conferences, allowing researchers to collaborate and discuss their findings, which benefits the larger rare disease community. Although great strides have been made in research, sponsors are urgently needed to accelerate the encouraging research that is bringing therapies - and ultimately the cures - to children and adults with MPS and related diseases.


The Ryan Foundation was founded in 1991 when Mark and Jeanne Dant's only child, three year old Ryan, was diagnosed with Mucopolysaccharidosis I (MPS I). At that time, children with MPS I rarely lived beyond the age of 15. Starting with a bake sale that netted $342, the all-volunteer Foundation grew and to date has distributed millions of dollars of research funding to scientists working on MPS.
Partnerships
The National MPS Society and the Ryan Foundation are partnering together to take advantage of this exciting opportunity to DOUBLE the amount of funds they raise to invest in MPS research. Please join us in this important endeavor by donating towards this event using the Donate Now! Button above and, if possible, by joining in the ride at the event in Philadelphia.

For more information about our missions please visit:

www.mpssociety.org
www.ryanfoundation.org
Help Raise Funds for Desperately Needed MPS Research
Those affected by MPS have no cure. There are treatments for some, but more and better treatments are needed! There is no time to lose. Your donation will help fund research in the search for the cures! A little can go a long way - each dollar raised up to $50,000 will be doubled through a matching grant!
  • Mucopolysaccharidosis
  • Lysosomal Diseases
  • Clinical Trials ongoing
  • Form a Team!
  • Share the link
  • 100% of your donation is tax-deductible
Donation messages
Go Team! Thank you for your efforts! In honor of Jackson and Sydney! --Carrie Dunn
In honor of our amazing MPS and ML families! --Alison Blue
In honor of Jennifer Klein, the sweetest daughter --Terri Klein
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser