Million Dollar Bike Ride - RASopathies
RASopathies Network

Who is the RASopathies Network?
The RASopathies Network is a non-profit dedicated to advancing research of the RASopathies by bringing together families, clinicians, and scientists. We have partnered with Penn to raise money for RASopathies research grants. To learn more go to http://rasopathiesnet.org
What are the RASopathies?
The RASopathies are a group of genetic conditions caused by mutations in genes on the Ras-MAPK pathway. These conditions, including Noonan syndrome/Noonan-related conditions (NS), cardio-facio-cutaneous syndrome (CFC), and Costello syndrome (CS) share many clinical features, including developmental delay, gastrointestinal difficulties, skeletal abnormalities, hematologic abnormalities, and growth delay.
Help Fund RASopathies Research
This grant will be awarded to academic researchers to initiate or advance RASopathies research - specifically CFC, Costello, and Noonan syndrome.

  • 100% of your donation is tax deductible
  • 100% of your donation goes to RASopathies research, no administrative costs taken out of your donation!
  • Donations will be matched by Penn if we raise $20,000!
Donation messages
Thanks to all the families who donated to RASopathies Network to forward to Penn Medicine! We exceeded our expectations this year. And, with deep gratitude, THANK YOU Penn Medicine for this invaluable opportunity, without which we could not manage. --RASopathies Network Donors
Thank you to all the MDBR RASopathies Research Donors and Bicyclers! --RASopathies Network Match Donors - and Match
RASopathies Network Riders ROCK! --Mr. Jack Bailey
Good luck with the fundraiser Lisa! --Mx. Elizabeth Schoyer
Go RASopathies Riders!!! --Lisa Schoyer and Lee Johnson
Donate now!
What are the RASopathies?
   
Top donors (9 donations)
RASopathies Network Donors $16931.03
RASopathies Network Match Donors - and Match $15000.00
Mr. Jack Bailey
Lisa Schoyer and Lee Johnson This amount includes donations indented below $785.00
   Mark & Julie Johnson
   Ms. Rebecca McLane
   Mx. Elizabeth Schoyer    $40.00
Anonymous
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser