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Million Dollar Bike Ride - RASopathies
RASopathies Network

Who is the RASopathies Network?
The RASopathies Network is a non-profit dedicated to advancing research to improve the quality of life for RASopathies families by bringing together families, clinicians, and scientists. We have partnered with Penn to raise money for RASopathies research grants. To learn more go to http://rasopathiesnet.org
What are the RASopathies?
The RASopathies are a group of genetic syndromes caused by mutations in genes on the Ras-MAPK pathway. These syndromes, which include: Noonan (NS), cardio-facio-cutaneous (CFC), Costello (CS), Neurofibromatosis type 1 (NF1), and LEOPARD/NSML, share many clinical features, including developmental delay, gastrointestinal difficulties, skeletal abnormalities, hematologic abnormalities, and growth delay.
Help Fund RASopathies Research
This grant will be awarded to academic researchers to initiate or advance RASopathies research - specifically cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS) syndrome.

  • 100% of your donation is tax deductible
  • 100% of your donation goes to RASopathies research, no administrative costs taken out of your donation!
  • Donations will be matched by Penn if we raise $20,000!
Donation messages
On behalf of all the families and organizations that entrusted the RASopathies Network to forward their donations to the Million Dollar Bike Ride, thank you, Penn Orphan Disease Center, for making it possible to provide research grants focusing on the RASopathies. We recognize how invaluable this opportunity is to advance understanding to help families caring for individuals with a RASopathy. --RASopathies Network
We are proud to support the research of the Rasopathies through the Million Dollar Bike Ride! --CFC International
In memory of Quin --Mr. Cyrus Miller
We are so grateful for all of your work, investment and care! Thank you! --Anonymous
Thank you for all the work you continue to do for our grandson and so many others. --Joe & Barb Hammar
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What are the RASopathies?
   
Top donors (11 donations)
RASopathies Network $20485.00
Mr. Cyrus Miller $1000.00
CFC International $1000.00
Children's Tumor Foundation
Anonymous This amount includes donations indented below $250.00
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lagarry@upenn.edu | Leigh Anne Garry, Director of Business Process Integration and Technology Training | 215.746.8840
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