Million Dollar Bike Ride - RASopathies
RASopathies Network

Who is the RASopathies Network?
The RASopathies Network is a non-profit dedicated to advancing research to improve the quality of life for RASopathies families by bringing together families, clinicians, and scientists. We have partnered with Penn to raise money for RASopathies research grants. To learn more go to
What are the RASopathies?
The RASopathies are a group of genetic syndromes caused by mutations in genes on the Ras-MAPK pathway. These syndromes, which include: Noonan (NS), cardio-facio-cutaneous (CFC), Costello (CS), Neurofibromatosis type 1 (NF1), and LEOPARD/NSML, share many clinical features, including developmental delay, gastrointestinal difficulties, skeletal abnormalities, hematologic abnormalities, and growth delay.
Help Fund RASopathies Research
This grant will be awarded to academic researchers to initiate or advance RASopathies research - specifically cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS) syndrome.

  • 100% of your donation is tax deductible
  • 100% of your donation goes to RASopathies research, no administrative costs taken out of your donation!
  • Donations will be matched by Penn if we raise $20,000!
Donation messages
Thank you for all the work you continue to do for our grandson and so many others. --Joe & Barb Hammar
Thanks for all you do, from our cheerful girl with CFC! --Nora
Donate now!
What are the RASopathies?
Top donors (4 donations)
Anonymous This amount includes donations indented below $250.00
Joe & Barb Hammar $100.00

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser