Get Involved!
This is an exciting time for the HI community because of the momentum around research for better detection, prevention, and treatment. Our participation in the Million Dollar Bike Ride in years past has led to:
2021 Grant Recipient: Dr. Elizabeth Rosenfeld, The Children's Hospital of Philadelphia for the Natural History of the Hyperinsulinism Hyperammonemia Syndrome - A Multi-center Observational Study Incorporating Patient-centered Data through the HI Global Registry (HIGR).
2020 Grant Recipient: Dr. Indraneel Banerjee, University of Manchester, Royal Manchester Children's Hospital for Maximizing the utilization of the Hyperinsulinism Global Registry (HIGR).
2019 Grant Recipient: Thomas Smith, PhD, of The University of Texas Medical Branch for new therapeutic treatments for hyperinsulinism/hyperammonemia syndrome.
2018 Grant Recipient: Dr. Amanda Ackermann of the Children's Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.
2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children's Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism.
2016 Grant Recipient: Dr. Changhong Li of Children's Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism.
2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy.
2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism.
Our efforts will be matched dollar-for-dollar by the University of Pennsylvania Penn Medicine Orphan Disease Center. This money will then be awarded as a research grant, so your contribution will go directly toward research for this important cause.
How can you be a part of this endeavor? There are two great options!
1. Donate to our fundraising effort using this page.
2. Cycle with our team in Philadelphia on Saturday, June 11, 2022, to rack up miles for research.
For more information about Congenital Hyperinsulinism International: http://congenitalhi.org/
For more information about this year's Million Dollar Bike Ride, visit this site: http://www.milliondollarbikeride.org/
For more information about the Penn Orphan Disease Center: http://www.med.upenn.edu/orphandisease/