Million Dollar Bike Ride - Pitt Hopkins
Logan Bomar's Fight For a Cure!

We are SO excited to be participating in this event again! This is the foundation's largest fundraiser of the year, and man oh man are we doing some exciting things with these donations!!! There is a current clinical trial that is targeting GI issues, which severely affects Logan and just about every PTHS kid and adult. There is also extremely promising gene therapy happening in the labs that gives us goosebumps! All of these studies, trials and research WILL be a game changer in Logan's quality of life, and it is all thanks to your donations. Every year we are blown away, and humbled, by the incredible support of our family and friends. Every single donation, no matter how big or small, truly means the world to our family.

Pitt Hopkins kids are amazing fighters. They never give up! These past few years have been especially challenging for the PTHS community. When the world shut down, our kids got shut out. All therapies and appointments came to a screeching hault, and some have yet to be resumed. Some kids thrived in home settings and virtual appointments, some regressed and new issues appeared. Families were tested on a new and scary level, but we all made it. Our kids made it and showed us how tough they really are! Logan continues to work hard to walk independently, communicate with an eye gaze device, and has proved how smart she is when we adapted her learning style. There is so much that I know she wants to communicate and show us, but finding ways that work for her is quite a challenge.
I can only imagine what she would be capable of if there were treatments..or a CURE! She will not let your donations go to waste. The hope alone keeps us going, which keeps her fighting!

To learn more about Logan and her Pitt Hopkin's story go to
Your Donation TRULY Counts!
For this ride, every dollar raised for Pitt Hopkins (up to $30,000) will be doubled and 100% of the donation will go to research. Logan is not riding this year (maybe next year!), but we are raising funds anyway, and will be supporting all of the riders. Any amount is more than greatly appreciated! Thank you for visiting this page and wanting to learn more about this cause.
Never Heard of Pitt Hopkins Syndrome? Most Have Not!
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, intellectual disability and possible seizures. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 600 children in the world diagnosed with this syndrome, however we believe there are many more.

For more information on Pitt Hopkins please visit
Donation messages
We love you Bomar Family! So proud of you and your beautiful girl! --The Graves Family
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Fundraising goal $2,000.00
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Recent donations (5 donations)
Name DescendingX Amount
Joanie and Dave $100.00
The Graves Family $100.00
Mrs. Janet Raffa $50.00
Rachel Stevens
Barry Family $100.00
Recent donations
Top donors (5 donations)
Barry Family $100.00
Joanie and Dave $100.00
The Graves Family $100.00
Mrs. Janet Raffa $50.00
Rachel Stevens

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser