Million Dollar Bike Ride - Pitt Hopkins
Logan Bomar's Fight For a Cure!

Working on physical therapy goals while zooming! Always multitasking and always working hard for the simplest things we take for granted.
We are SO excited to be participating in this event again! This is the foundation's largest fundraiser of the year, and this year marks the first ever clinical trial! It is targeting GI issues, which severely affects Logan and just about every PTHS kid and adult. This could be a game changer in their quality of life, and it is all thanks to your donations. Every year we are blown away, and humbled, by the incredible support of our family and friends. Every single donation, no matter how big or small, truly means the world to our family.

Pitt Hopkins kids are amazing fighters. They never give up! This year has been especially challenging for the PTHS community. When the world shut down, our kids got shut out. All therapies and appointments came to a screeching hault, and some have yet to be resumed. Some kids thrived in home settings and virtual appointments, some regressed and new issues appeared. Families were tested on a new and scary level, but we all made it. Our kids made it and showed us how tough they really are! Logan continues to work hard to walk independently, communicate with an eye gaze device, and has proved how smart she is when we adapted her learning style. There is so much that I know she wants to communicate and show us, but finding ways that work for her is quite a challenge.
I can only imagine what she would be capable of if there were treatments..or a CURE! She will not let your donations go to waste. The hope alone keeps us going, which keeps her fighting!


To learn more about Logan and her Pitt Hopkin's story go to www.logansluxuries.com
Your Donation TRULY Counts!
For this ride, every dollar raised for Pitt Hopkins (up to $50,000) will be doubled and 100% of the donation will go to research. Logan is not riding this year (maybe next year!), but we are raising funds anyway, and will be supporting all of the riders. Any amount is more than greatly appreciated! Thank you for visiting this page and wanting to learn more about this cause.
Never Heard of Pitt Hopkins Syndrome? Most Have Not!
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, intellectual disability and possible seizures. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 600 children in the world diagnosed with this syndrome, however we believe there are many more.

For more information on Pitt Hopkins please visit www.pitthopkins.org
Donation messages
We love your attitude and faith as you continue forward in the challenges ahead. We had a son with a rare disease and he no doubt was one of our greatest blessings. --Dan & Denise Dickel
Mac and Tracey, Sending much love and thoughts of support to all. --Mr. JOE EHRMANN
Mac & Family , God has been so good to us and blessed us abundantly so we can share this gift for your granddaughter! Our prayers are with you ALL! Rex & Nancy Kern ole #44 --Rex & Nancy Kern ole #44
Keep up the good fight. Our prayers are with you and hope research will find a way to help these beautiful children. --Bonnie and John Williamson
We love you, Logan! --Krystie, Dave, Colt and Getty Inman
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Fundraising goal $5,000.00
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Recent donations (32 donations)
Name DescendingX Amount
Dan & Denise Dickel
Mr. JOE EHRMANN
Mike Coffas $100.00
Rex & Nancy Kern ole #44 $1000.00
Ernie Accorsi
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Recent donations
Top donors (32 donations)
Rex & Nancy Kern ole #44 $1000.00
Tracey and Don McCauley $500.00
Mansfield Family
Krystie, Dave, Colt and Getty Inman $300.00
The Davenports
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
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