Million Dollar Bike Ride - Adult Polyglucosan Disease Fund
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The Story of APBD Research Foundation
Fundraising goal $40,000.00
Recent donations (11 donations)
Name DescendingX Amount
Yasha and Tanya Zelmanovich $100.00
Sandi Packman $100.00
Anonymous $100.00
Dr. Bruce Morse $250.00
Anonymous $1000.00
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Recent donations
Top donors (11 donations)
Anonymous $1000.00
Delsey and Tedward This amount includes donations indented below $250.00
   Anonymous    $100.00
Dr. Bruce Morse $250.00
Elisa $118.00
Anonymous $100.00
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APBD Tour de Friends - Help us earn $60K in Matching Funds!

APBD Manifests During the Prime of Life
APBD is a rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe degenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
We're Raising Dollars To Bring About a Cure
In 1991, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure! Please throw your weight behind the effort.
This year we have a Triple Play that boosts the power of your donation!
The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. And we also have Community Supporters who'll MATCH the ODC match. Every dollar you donate can generate $3 in research. *We respectfully ask that you make your donations before the ride starts on June 12.*

ODC banks all funds on our behalf and administers research grants to top notch researchers around the world. This is a powerful opportunity to advance APBD research. Please be generous with your support.

RIDE WITH US VIRTUALLY.. on your bike, on a scooter, on an exercycle, or in your imagination. And don't forget to take a friend with you! Go here to register www.bitly.com/TeamRider

See our website: www.APBDRF.org for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.

Please be sure to check out more videos and subscribe to our YouTube channel: https://www.youtube.com/APBDRFoundation
Donation messages
Good luck! --Sandi Packman
On behalf of everyone who has APBD. Let's find a cure. --Mr. Robert Schrier
Our Baba needs to get his feet and legs fixed so he can walk with us to the Magic Path and the Magic Circle. --Delsey and Tedward
Hope for the future --Pat & Larry Schatt
Donating with love and prayers. CS** --Elisa
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser