Million Dollar Bike Ride - Adult Polyglucosan Disease Fund
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The Story of APBD Research Foundation
Fundraising goal $40,000.00
Recent donations (70 donations)
Name DescendingX Amount
Community Supporters $30000.00
Chuck and Harriet Saxe $4000.00
Michael and Vicki Winston $50.00
Emil Weiss and family
John Chaplin / Jill Adams
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Recent donations
Top donors (70 donations)
Community Supporters $30000.00
Anonymous
Susan Coddon $6000.00
Mrs. Joan Lipsig $5000.00
Laura & David Epstein This amount includes donations indented below $4100.00
   Laura & David Epstein    $1000.00
   Anonymous
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APBD Tour de Friends - Help us earn $60K in Matching Funds!

APBD Manifests During the Prime of Life
APBD is a rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe degenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
We're Raising Dollars To Bring About a Cure
In 1991, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure! Please throw your weight behind the effort.
This year we have a Triple Play that boosts the power of your donation!
The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. And we also have Community Supporters who'll MATCH the ODC match. Every dollar you donate can generate $3 in research. *We respectfully ask that you make your donations before the ride starts on June 12.*

ODC banks all funds on our behalf and administers research grants to top notch researchers around the world. This is a powerful opportunity to advance APBD research. Please be generous with your support.

RIDE WITH US VIRTUALLY.. on your bike, on a scooter, on an exercycle, or in your imagination. And don't forget to take a friend with you! Go here to register www.bitly.com/TeamRider

See our website: www.APBDRF.org for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.

Please be sure to check out more videos and subscribe to our YouTube channel: https://www.youtube.com/APBDRFoundation
Donation messages
Today the Tour de Friends riding team reached over $34,500 in donations. Thanks to the Orphan Disease Center at UPenn, the first $30,000 will be matched. We Community Supporters are thrilled to also match the first $30,000 raised. This means APBD research in 2022 will go forward with $94,500 in grants......That's stellar! Can YOU help us make it to $100,000? --Community Supporters
Supporting the research that will bring us relief. Remembering family members who were claimed by APBD -- Herbert Saxe, Adele Eisen Saxe, Hannah Saxe Frank, and Carol Frank Morse. --Chuck and Harriet Saxe
In honor of Jeff and Beth Katz who are fighting the fight! --Michael and Vicki Winston
In memory of Gregory --Emil Weiss and family
In honor of Sarah Williams and Family --John Chaplin / Jill Adams
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser