Million Dollar Bike Ride - Tay-Sachs
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  Emily Lynn Jones  
Fundraising goal $20,000.00
Recent donations (18 donations)
Name DescendingX Amount
PBaker $100.00
George & Virginia Baker $500.00
Mr. Douglas Borofsky $25.00
Mr. CB Chappell $110.00
Camie & Mark Costanzo $20.00
Top donors (18 donations)
National Tay-Sachs & Allied Diseases Association $14923.00
Meredith & Jim Margolis $1000.00
George & Virginia Baker $500.00
Anonymous This amount includes donations indented below
   The Zimmerman Family    $100.00
   Camie & Mark Costanzo    $20.00
   Meryl Kallish    $50.00
Monica and Gary Gettleman $136.00
NTSAD Million Dollar Bike Ride

National Tay-Sachs & Allied Diseases Association (NTSAD) is one of the oldest patient advocacy groups in the country. We focus on funding research, supporting over 500 families and individuals worldwide, and raising awareness to prevent disease.

Today, NTSAD is recognized as a leading non-profit patient group with a demonstrated commitment to service, science and support. NTSAD gives help and hope to thousands of individuals and families from many backgrounds and ethnicities who have been or are affected by Tay-Sachs, Sandhoff, GM-1, Canavan and related genetic diseases all over the world.
By joining TEAM NTSAD today - you are riding for every child, adolescent and adult affected by Tay-Sachs, GM-1, Sandhoff and Canavan disease in one of its RARE forms. JOIN TODAY and RIDE TO MAKE A DIFFERENCE!

NTSAD provides comprehensive support services to affected families and individuals through its Peer Support Group (PSG). NTSAD links about 500 parents, grandparents, extended family, affected adults and their families and caregivers to each other via a confidential network. Other services available to PSG members include an Annual Family Conference, PSG directory, quarterly newsletters, and materials and support for fundraising and awareness events.

NTSAD's goals are to direct, fund and promote research to develop treatments and cures. Working with its Scientific Advisory Committee, NTSAD identifies promising therapeutic approaches to fund through the Research Initiative grant program.

NTSAD offers educational and awareness programs directly as well as through collaborations with chapters, affiliates and other community partners.
About the ride
Cyclists will be completing 12, 33, or 73 miles along Highline Park in Philadelphia.
Registration with fundraising is $25 and fundraisers have to raise a minimum of $250.
Alternatively riders can register without fundraising for $60 before April 1st, $80 after April 1st, or $100 on the day of the ride.
  • 12, 33, or 73 miles
  • May 20th
  • Donations support NTSAD research
  • Donations will be matched dollar for dollar up to $50,000
  • $25 registration + $250 in fundraising
  • $80 registration without fundraising
  • All donors will receive a t-shirt
  • 100% of your donation is tax-deductible
Donation messages
Keep up the good work!! --PBaker
Go team NTSAD! This donation is in honor of our sweet angel Brooke! --Monica and Gary Gettleman
So grateful for loving, brilliant, determined people like you who make the world a better place. So inspired by and in awe of the work you do. --Ms. Marci Gonzalez
So proud of you for all your efforts to help find a cure! --Jessica & Joey Yelvington
God Bless all of you dedicated researchers working so hard to find cures for these precious children. --George & Virginia Baker
Jim and I make this donation in memory of our daughter, Mollie, who had Tay-Sachs disease. Mollie would have been thirty years old this September. We still love and miss her. --Meredith & Jim Margolis
Hoping every day for a cure! --Mr. CB Chappell
Let's cheer for Team NTSAD! Thanks to all the riders and donors. ps My gift is $60 in honor of NTSAD's 60th anniversary. --Sue Kahn
Ride Staci Ride! --Karla Jones

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Post fundraising progress | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser