Million Dollar Bike Ride - Congenital Muscular Dystrophy

Team Cure CMD/Collagen VI (Ullrich/Bethlem)
Information on CMD's
Collagen VI Congenital Muscular Dystrophy is a rare disease causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. Some children never gain the ability to walk, while others lose the ability as they grow older. Affected individuals also may suffer from respiratory insufficiency, failure to thrive, contractures, and scoliosis. There is currently no treatment or cure. We are focusing Team Cure CMD's fundraising on Collagen VI CMD.
How important is the Million Dollar Bike Ride to a rare disease like CMD?
Each team who raises the minimum of $20,000 will be matched dollar-for-dollar up to $20,000 for research Penn's Center for Orphan Disease Research and Therapy!!!

With your help, in 2020 Cure CMD raised over $90,000 including the match by Penn ODC! We funded 2 Collagen VI research grants totaling over $90,000 to:

Novel tools for drug repurposing in COL6 myopathies: accelerating the route towards therapy.
Awardee: Paolo Bonaldo
Institution: University of Padova, Department of Molecular Medicine
Award Amount: $42,406
Funding Period: February 1, 2021 - January 31, 2022

Targeting muscle stem cells for the treatment of Collagen VI muscular dystrophies
Awardee: Nicholas Dumont
Institution: CHU Sainte-Justine research center (University of Montreal)
Award Amount: $42,406
Funding Period: February 1, 2021 - January 31, 2022

Please consider making a donation (by clicking on the "Donate Now!" button), checking if your employer will match your donation (http://www.matchinggifts.com/uofpa/), sharing this donation page with others, or even joining us on the ride!
The MDBR is Saturday, June 12st!
The Million Dollar Bike Ride is virtual in 2021! You can ride whatever distance you want on whatever day you want! All registration fees and donations goes to fund Collagen VI research and will be matched by the Penn Medicine Orphan Disease Center when we reach $20,000!!

  • http://givingpages.upenn.edu/CureCMDParks
  • http://givingpages.upenn.edu/liammiller
Donation messages
Help us get started by donating!
Next
Donate now!
Fundraising goal $20,000.00
   
Recent donations (21 donations)
Help us get started by donating!
Next
Recent donations
Top donors (21 donations)
Help us get started by donating!
Next
Donate!

Share this page with your friends
Post fundraising progress

delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser